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“Digital Natives”: How Medical and Indigenous Histories Matter for Big Data
Osiris ( IF 0.9 ) Pub Date : 2017-09-01 , DOI: 10.1086/693853
Joanna Radin

This case considers the politics of reuse in the realm of “Big Data.” It focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation and circulation of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. By adapting the concept of the “digital native” itself for reuse, I argue that the history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin. In doing so, this history highlights otherwise obscured matters of ethics and politics that are relevant to communities who identify as Indigenous as well as those who do not.

中文翻译:

“数字原住民”:医学和土著历史对大数据的重要性

本案例考虑了“大数据”领域的重用政策。它侧重于特定数据集合的历史,这些数据是从涉及美国西南部吉拉河印第安社区保留地土著成员的纵向流行病学研究过程中的患者记录中提取和数字化的。Pima Indian Diabetes Dataset (PIDD) 的创建和流通展示了医学和土著历史对大数据研究的价值。通过调整“数字原住民”本身的概念以供重用,我认为 PIDD 的历史揭示了数据如何与人疏远,即使它再现了其起源环境的复杂社会现实。在这样做,
更新日期:2017-09-01
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