ABSTRACT

Caregivers of children with cystic fibrosis (CF) are at risk for psychosocial difficulties, which has been related to poorer child well-being and medical adherence. The present study utilized the National Survey of Children’s Health (NSCH) to examine self-reported differences in caregiver functioning among a matched sample of caregivers of youth with CF, asthma, and healthy controls (N = 114). CF caregivers reported poorer mental health and more parenting aggravation. Among CF caregivers, poorer caregiver mental health predicted less family resilience, which in turn, predicted more parenting aggravation. Findings have implications for prevention screening and brief interventions within pulmonary medicine.

摘要

患有囊性纤维化（CF）的儿童的照护者有可能遭受社会心理困扰，这与儿童健康状况和医疗依从性下降有关。本研究利用全国儿童健康调查（NSCH）来检查自我报告的CF，哮喘和健康对照青年（N = 114）的照料者匹配样本之间照料者功能的差异。CF的照护者报告说他们的心理健康状况较差，父母教养情况更严重。在CF照料者中，照料者的心理健康状况较差预示着家庭的适应力下降，从而预示着父母教养加重的情况会增加。这些发现对肺部疾病的预防筛查和短暂干预具有重要意义。