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Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research
Field Methods ( IF 1.1 ) Pub Date : 2020-12-30 , DOI: 10.1177/1525822x20982089
Susan R Passmore 1 , Amelia M Jamison 2 , Moaz Abdelwadoud 3 , Taylor B Rogers 4 , Morgan Wiggan 2 , Daniel C Mullins 3 , Stephen B Thomas 2
Affiliation  

To explore the willingness to participate in genomics research among African Americans, we developed a technique specifically suited to a relaxed social setting. The “Qualitative Story Deck,” (QSD) is a gamified, structured elicitation technique that allows for the spontaneous creation of scenarios with variable attributes. We used the QSD to create research scenarios that varied on four details (race/ethnicity of the researcher, research goal, biospecimen requested, and institutional affiliation). Participants created scenarios by randomly choosing cards from these categories and provided: (1) a judgment about their willingness to participate in the research project represented; and (2) their thought process in reaching a decision. The QSD has applicability to topics involving decision making or in cases where it would be beneficial to provide vignettes with alternate attributes. Additional benefits include rapid rapport building, applicability to little known or sensitive topics, and suitability for both qualitative and quantitative analyses.



中文翻译:

使用定性故事平台创建场景并揭示与非裔美国人参与基因组学研究相关的因素

为了探索非洲裔美国人参与基因组学研究的意愿,我们开发了一种特别适合轻松社交环境的技术。“Qualitative Story Deck”(QSD) 是一种游戏化的结构化启发技术,允许自发创建具有可变属性的场景。我们使用 QSD 创建了在四个细节上有所不同的研究场景(研究人员的种族/民族、研究目标、请求的生物样本和机构隶属关系)。参与者通过从这些类别中随机选择卡片来创建场景,并提供:(1)对他们参与所代表的研究项目的意愿的判断;(2) 他们在做出决定时的思考过程。QSD 适用于涉及决策制定的主题,或者在提供具有替代属性的小插图会有益的情况下。其他好处包括快速建立融洽关系、适用于鲜为人知或敏感的话题,以及适用于定性和定量分析。

更新日期:2021-01-14
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