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Exploring the perceptions and stigmatizing experiences of Israeli family caregivers of people with Parkinson's disease
Journal of Aging Studies ( IF 1.8 ) Pub Date : 2020-12-24 , DOI: 10.1016/j.jaging.2020.100910
Hanan AboJabel 1 , Einat Argavan 1 , Sharon Hassin-Baer 2 , Rivka Inzelberg 3 , Perla Werner 1
Affiliation  

Providing care to people with Parkinson's disease (PD) poses challenges for family carers, including experiencing stigmatic beliefs —i.e., family stigma. However, to the best of our knowledge, there is no empirical study examining the stigmatic experiences of family members of people with PD. This was the aim of the present study. Three focus groups with 22 Israeli spouses of people with PD were conducted. Data were analyzed using theory-led thematic analysis. Overall, the spouses in our study shared mainly experiences of the stigma attached to the illness and/or to their loved ones, and not to themselves as carers. Three major themes emerged: the stereotypes that typify PD, stigmatizing behaviors towards the person with the disease, and structural stigma. Our findings highlight the profound stigma confronting carers of persons with PD, particularly when it comes to structural stigma.



中文翻译:

探索以色列帕金森病患者家庭照顾者的看法和污名化经历

为帕金森氏病 (PD) 患者提供护理给家庭护理人员带来了挑战,包括体验污名化信念——即家庭污名化。然而,据我们所知,没有实证研究检验 PD 患者家庭成员的耻辱经历。这是本研究的目的。进行了三个焦点小组,由 22 名 PD 患者的以色列配偶组成。使用以理论为主导的专题分析来分析数据。总的来说,我们研究中的配偶主要分享了疾病和/或他们所爱的人的耻辱感,而不是他们作为照顾者的耻辱感。出现了三个主要主题:典型的 PD 刻板印象、对患者的污名化行为以及结构性污名。我们的研究结果突出了 PD 患者的照顾者面临的深刻耻辱,

更新日期:2020-12-24
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