In an era of increasing technology and interaction with the patient bedside, we explore the role of relocating the bedside from the hospital to the home using telemedicine. The COVID‐19 pandemic pushed telemedicine from small and pilot programs to widespread practice at an unprecedented rate. With the rapid implementation of telemedicine, it is important to consider how to create a telehealth system that provides both good care for patients and families while maintaining an excellent education environment for trainees of all levels. To this end, we developed telemedicine educational milestones to describe novel skills required to provide high quality telemedicine care, and allow trainees and clinical educators a metric by which to assess trainee progress. We also created methods and tools to help trainees learn and families feel comfortable in their new role as virtual collaborators. We envision a time when safety does not set the venue; instead the needs of the patient will dictate whether a virtual or in‐person visit is the right choice for a family. We expect that pediatric medical genetics and metabolism groups across the country will continue to set a standard of a hybrid care system to meet the unique needs of each individual patient, using telemedicine technology.

中文翻译：

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儿科医学遗传学上门服务：面向下一代患者和医疗服务提供者的远程医疗

在一个技术日新月异并与患者床边互动的时代，我们探讨了使用远程医疗将床边从医院重新安置到家庭中的作用。COVID-19大流行以前所未有的速度将远程医疗从小型计划和试点计划推向了广泛的实践。随着远程医疗的迅速实施，重要的是要考虑如何创建一种既能为患者和家庭提供良好护理又能为各级学员保持良好教育环境的远程医疗系统。为此，我们开发了远程医疗教育里程碑，以描述提供高质量远程医疗护理所需的新颖技能，并为受训者和临床教育工作者提供评估受训者进度的指标。我们还创建了方法和工具，以帮助受训者学习并让家人感到满意，他们可以扮演虚拟合作者的新角色。我们预见到安全性无法发挥作用的时间；取而代之的是，患者的需求将决定虚拟访问或亲自访问是家庭的正确选择。我们希望，全国各地的儿科医学遗传学和新陈代谢小组将继续使用远程医疗技术，建立混合护理系统的标准，以满足每个患者的独特需求。