This study examines how people affected by sensory processing disorder (SPD) make their sensory experience visible and meaningful in their unprompted public blog-writing. I analyzed 66 online narratives written by 44 people affected by SPD. The non-normative sensory responses of people with SPD are invisible but may result in socially disapproved and challenging behavior (e.g., extreme picky eating). Minimal social and medical recognition of this condition puts people affected by SPD in the position of needing to explain their experience and account for behaviors that are culturally coded as inappropriate. To understand how people affected by SPD communicated their experience to unknown readers, I used techniques associated with grounded theory to analyze their unprompted narratives on The Mighty. Bloggers use several strategies to define SPD for readers, including making use of expert definitions, examples, and comparisons with normative sensory experience, and negative definitions that differentiated SPD from other disorders, normal childhood behavior, and misbehavior. Bloggers used these definitional strategies in conjunction with discourses of normal childhood, good parenting, and biomedicine to communicate and legitimize their experience. Moreover, bloggers did not challenge normative expectations of the human senses but instead reinforced conventional notions about how the senses are supposed to work.

中文翻译：

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在线躯体工作：感觉加工障碍案例

这项研究调查了受感觉处理障碍 (SPD) 影响的人如何在他们自发的公共博客写作中使他们的感官体验可见且有意义。我分析了 44 位受 SPD 影响的人撰写的 66 篇在线叙事。SPD 患者的非规范性感官反应是不可见的，但可能会导致社会不认可和具有挑战性的行为（例如，极端挑食）。对这种情况的社会和医学认知度最低，使受 SPD 影响的人处于需要解释他们的经历并解释文化上被编码为不适当的行为的位置。为了了解受 SPD 影响的人们如何将他们的经历传达给不知名的读者，我使用了与扎根理论相关的技术来分析他们对The Mighty 的自发叙述. 博主使用多种策略为读者定义 SPD，包括使用专家定义、示例和与规范感官体验的比较，以及将 SPD 与其他疾病、正常儿童行为和不当行为区分开来的否定定义。博主将这些定义策略与正常童年、良好父母教养和生物医学的话语结合使用，以交流和使他们的经历合法化。此外，博客作者并没有挑战人类感官的规范期望，而是强化了关于感官应该如何工作的传统观念。