Genomic citizen science initiatives that promote public involvement in the study or manipulation of genetic information are flourishing. These initiatives are diverse and range from data donation studies, to biological experimentation conducted in home and community laboratories, to self-experimentation. Understanding the values that citizen scientists associate with their activities and communities can be useful to policy development for citizen science. Here, we report values-relevant data from qualitative interviews with 38 stakeholders in genomic citizen science. Applying a theoretical framework that describes values as transcendent beliefs about desirable end states or behaviors that can be categorized according to the motivational goals they express and the interests they serve, we identified nine core values of genomic citizen science: altruism, autonomy, fun, inclusivity, openness, reciprocity, respect, safety, and solidarity.

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基因组公民科学的核心价值：定性访谈研究的结果

促进公众参与遗传信息研究或操作的基因组公民科学倡议正在蓬勃发展。这些举措多种多样，范围从数据捐赠研究到在家庭和社区实验室进行的生物实验，再到自我实验。了解公民科学家与其活动和社区相关的价值观可能有助于公民科学的政策制定。在这里，我们报告了与 38 名基因组公民科学利益相关者的定性访谈中的价值相关数据。应用一个理论框架，将价值观描述为关于理想的最终状态或行为的超越信念，可以根据他们表达的动机目标和他们服务的利益进行分类，我们确定了基因组公民科学的九个核心价值观：