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TBI-CareQOL family disruption: Family disruption in caregivers of persons with TBI.
Rehabilitation Psychology ( IF 1.9 ) Pub Date : 2020-11-01 , DOI: 10.1037/rep0000297
Noelle E Carlozzi 1 , Rael T Lange 2 , Nicholas R Boileau 1 , Michael A Kallen 3 , Angelle M Sander 4 , Robin A Hanks 5 , Risa Nakase-Richardson 6 , David S Tulsky 7 , Jill P Massengale 8 , Louis M French 2 , Tracey A Brickell 2
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PURPOSE Family disruption is often an indirect consequence of providing care for a person with traumatic brain injury (TBI). This article describes the development and preliminary validation of a Family Disruption scale designed for inclusion within the TBI-CareQOL measurement system. METHOD/DESIGN Five hundred thirty-four caregivers of persons with TBI (service member/veteran n = 316; civilian n = 218) completed the Family Disruption scale, alongside several other measures of caregiver strain and health-related quality of life. Classical test theory and item response theory (IRT)-based analyses were conducted to develop, and establish reliability and validity of, this scale. RESULTS Exploratory and confirmatory factor analysis, as well as Samejima's graded response model-related IRT fit analyses, supported the development of a 3-item scale. This final scale is scored on a T score metric (M = 50; SD = 10); higher scores are indicative of more family disruption. Reliability (internal consistency; test-retest stability) was supported for both caregiver groups, and average administration times were under 10 s. Convergent and discriminant validity were supported by strong correlations between Family Disruption and measures of caregiver burden, and smaller correlations with positive aspects of caregiving. As evidence of known-groups validity, caregivers of lower-functioning persons with TBI experienced more family disruption than caregivers of higher functioning individuals. CONCLUSIONS The TBI-CareQOL Family Disruption scale is a brief, reliable, and valid assessment of caregiver perceptions of how caring for an individual with a TBI interferes with family life. This measure is well-suited for inclusion in studies seeking to support family functioning in persons with TBI. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

中文翻译:

TBI-CareQOL 家庭中断:TBI 患者的照顾者的家庭中断。

目的 家庭破裂通常是为创伤性脑损伤 (TBI) 患者提供护理的间接后果。本文描述了设计用于包含在 TBI-CareQOL 测量系统中的家庭中断量表的开发和初步验证。方法/设计 534 名 TBI 患者的照顾者(服务人员/退伍军人 n = 316;平民 n = 218)完成了家庭破裂量表,以及照顾者压力和健康相关生活质量的其他几项测量。进行了基于经典测试理论和项目反应理论 (IRT) 的分析,以开发并建立该量表的信度和效度。结果 探索性和验证性因素分析,以及Samejima 分级反应模型相关的IRT 拟合分析,支持了3 项量表的开发。这个最终量表是根据 T 分数指标(M = 50;SD = 10)进行评分的;更高的分数表明更多的家庭破裂。两个护理人员组的可靠性(内部一致性;重测稳定性)均得到支持,平均给药时间低于 10 秒。家庭破裂与照顾者负担测量之间的强相关性以及与照顾者积极方面的较小相关性支持收敛效度和区分效度。作为已知群体有效性的证据,与功能较高的人的照顾者相比,TBI 低功能患者的照顾者经历了更多的家庭破裂。结论 TBI-CareQOL Family Disruption 量表是一个简短、可靠和有效的评估,用于评估看护人对照顾 TBI 个人如何干扰家庭生活的看法。该措施非常适合纳入寻求支持 TBI 患者家庭功能的研究。(PsycINFO 数据库记录 (c) 2019 APA,保留所有权利)。
更新日期:2020-11-01
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