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Putting birth defects surveillance data to action
Birth Defects Research ( IF 1.6 ) Pub Date : 2020-12-29 , DOI: 10.1002/bdr2.1861
Russell S Kirby 1 , Marilyn L Browne 2, 3
Affiliation  

For many years, the National Birth Defects Prevention Network (NBDPN) in collaboration with the U.S. National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention provides an annual report with materials to advance the field of birth defects surveillance, epidemiology, and public health practice. This year our report includes an editorial along with eight research papers as well as a brief report incorporating recent data from many state‐based programs to provide a national perspective on co‐occurring birth defects among infants born with Down syndrome. However, the program directory and state data tables are not incorporated into the issue as supplemental materials as has been our practice in the past. These will be produced biannually in the future and disseminated through a website rather than through the Birth Defects Research journal portal.

This issue begins with an editorial that examines opportunities for collaboration between birth defects registries and teratogen information services to enable research and support the information needs of clinicians and families. The eight contributed papers focus on surveillance methods, descriptive epidemiology, risk factors for birth defects, and health services research. Incorporation of records for stillbirths or fetal death events has been a long‐standing goal for birth defects surveillance. Tessaroio et al. examine the benefit of reviewing medical records for all fetal deaths, compared to reviewing only records with anomaly codes in the maternal hospital discharge summary. Samson et al. contribute an evaluation of the South Carolina birth defects registry. The four following papers fall into the domain of descriptive epidemiology. Politis et al. examine data from registries around the globe in a study of the recent prevalence of mortality experience of omphalocele. Sandidge et al. and Hussaini et al. study the prevalence of birth defects among infants affected by neonatal abstinence syndrome in the states of Illinois and Delaware, respectively. Orbain et al. analyze patterns of birth defects associated with maternal diabetes using data from the state of Utah. The paper by Krajewski et al. examines associations of environmental quality measures and selected birth defects in Texas. Hsu et al. provide an analysis of patterns of inpatient admission and hospital costs for adolescents and young adults with congenital heart defects in New York state. The issue concludes with a study utilizing data from many U.S. states to examine patterns of structural birth defects among infants born with Down syndrome during 2013–2017.

The articles included in this issue of Birth Defects Research were selected from those submitted in response to a call for manuscripts distributed to all state birth defect surveillance programs, NBDPN members, the birth defects surveillance list service, and posted on the NBDPN website (http://www.nbdpn.org). Each of the articles included in this issue underwent both editorial and formal blinded peer review. The review process was facilitated by the use of the online ScholarOne peer‐review management system provided by Wiley for the Birth Defects Research editors. As with many collaborative enterprises, dedicated individuals too numerous to mention contributed their time and effort to ensure the quality of the NBDPN annual report. These include the many peer reviewers of these manuscripts and the authors of all the submitted manuscripts. We also thank the members of the NBDPN Data and Publications and Communications Committees, as well as Jennifer Isenburg, Erin Stallings, and Leslie O'Leary at the National Center on Birth Defects and Developmental Disabilities. We thank the Birth Defects Research editors, especially Michel Vekemans and Christina Chambers for their assistance with the submission and publication of these manuscripts. We also would like to thank the Division of Birth Defects and Infant Disorders at the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, for its support of the NBDPN.



中文翻译:

将出生缺陷监测数据付诸行动

多年来,美国国家出生缺陷预防网络 (NBDPN) 与美国疾病控制与预防中心的美国国家出生缺陷和发育障碍中心合作,提供年度报告和材料,以推动出生缺陷监测、流行病学领域的发展和公共卫生实践。今年,我们的报告包括一篇社论和八篇研究论文以及一份简要报告,其中包含来自许多州级项目的最新数据,以提供有关唐氏综合症婴儿共发生出生缺陷的全国视角。然而,程序目录和状态数据表并没有像我们过去的做法那样作为补充材料纳入问题。出生缺陷研究期刊门户。

本期以一篇社论开始,探讨了出生缺陷登记处和致畸剂信息服务之间合作的机会,以促进研究并支持临床医生和家庭的信息需求。八篇投稿论文侧重于监测方法、描述性流行病学、出生缺陷的危险因素和卫生服务研究。纳入死产或胎儿死亡事件的记录一直是出生缺陷监测的长期目标。泰萨罗约等人。检查与仅查看孕产妇出院总结中的异常代码记录相比,查看所有胎儿死亡医疗记录的好处。萨姆森等人。贡献对南卡罗来纳州出生缺陷登记处的评估。以下四篇论文属于描述性流行病学领域。波利蒂斯等人。在一项关于脐膨出死亡率经历的近期流行率的研究中,检查来自全球登记处的数据。桑迪奇等人。和侯赛尼等人。分别研究伊利诺伊州和特拉华州受新生儿禁欲综合症影响的婴儿的出生缺陷患病率。奥尔班等人。使用犹他州的数据分析与母亲糖尿病相关的出生缺陷模式。Krajewski 等人的论文。检查德克萨斯州环境质量措施和特定出生缺陷的关联。许等人。提供对纽约州先天性心脏缺陷青少年和年轻成人住院和住院费用模式的分析。该问题以一项利用许多美国数据的研究结束

本期《出生缺陷研究》中的文章选自为响应分发给所有州出生缺陷监测计划、NBPDN 成员、出生缺陷监测列表服务的手稿征集而提交的文章,并发布在 NBDPN 网站 (http: //www.nbdpn.org)。本期收录的每篇文章都经过了编辑和正式的盲审同行评审。使用 Wiley 为出生缺陷研究编辑提供的在线 ScholarOne 同行评审管理系统促进了评审过程。与许多合作企业一样,无数敬业的个人贡献了他们的时间和精力来确保 NBDPN 年度报告的质量。其中包括这些手稿的许多同行评审员和所有提交手稿的作者。我们还要感谢 NBDPN 数据和出版物及通讯委员会的成员,以及国家出生缺陷和发育障碍中心的 Jennifer Isenburg、Erin Stallings 和 Leslie O'Leary。我们感谢出生缺陷研究编辑,尤其是 Michel Vekemans 和 Christina Chambers,感谢他们协助提交和出版这些手稿。我们还要感谢疾病控制和预防中心国家出生缺陷和发育障碍中心出生缺陷和婴儿疾病司对 NBDPN 的支持。我们感谢出生缺陷研究编辑,尤其是 Michel Vekemans 和 Christina Chambers,感谢他们协助提交和出版这些手稿。我们还要感谢疾病控制和预防中心国家出生缺陷和发育障碍中心出生缺陷和婴儿疾病司对 NBDPN 的支持。我们感谢出生缺陷研究编辑,尤其是 Michel Vekemans 和 Christina Chambers,感谢他们协助提交和出版这些手稿。我们还要感谢疾病控制和预防中心国家出生缺陷和发育障碍中心出生缺陷和婴儿疾病司对 NBDPN 的支持。

更新日期:2021-01-14
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