Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system,Epilepsia

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Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system
Epilepsia ( IF 6.6 ) Pub Date : 2020-12-24 , DOI: 10.1111/epi.16733
Zachary M Grinspan ₁ , Anup D Patel ₂ , Renée A Shellhaas ₃ , Anne T Berg _{4,

5} , Erika T Axeen ₆ , Jeffrey Bolton _{7,

8} , David F Clarke ₉ , Jason Coryell ₁₀ , William D Gaillard ₁₁ , Howard P Goodkin ₆ , Sookyong Koh ₁₂ , Alison Kukla ₁₃ , Juma S Mbwana ₁₁ , Lindsey A Morgan _{14,

15} , Nilika S Singhal ₁₆ , Margaret M Storey ₁₇ , Elissa G Yozawitz ₁₈ , Nicholas S Abend _{19,

20} , Mark P Fitzgerald _{19,

20} , Sara E Fridinger _{19,

20} , Ingo Helbig _{19,

20,

21,

22} , Shavonne L Massey _{19,

20} , Marisa S Prelack _{19,

20} , Jeffrey Buchhalter ₂₃ ,

Affiliation

Departments of Population Health Sciences and Pediatrics, Weill Cornell Medicine, New York, NY, USA.
Division of Neurology, Nationwide Children's Hospital, Columbus, OH, USA.
Department of Pediatrics (Pediatric Neurology), Michigan Medicine, University of Michigan, Ann Arbor, MI, USA.
Division of Neurology, Epilepsy Center, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Department of Pediatrics, Northwestern Feinberg School of Medicine, Chicago, IL, USA.
Department of Neurology, University of Virginia, Charlottesville, VA, USA.
Harvard Medical School, Boston, MA, USA.
Division of Epilepsy and Clinical Neurophysiology, Department of Neurology, Boston Children's Hospital, Boston, MA, USA.
Division of Pediatric Neurology, Department of Neurology, Dell Medical School, University of Texas at Austin, Austin, TX, USA.
Departments of Pediatrics and Neurology, Oregon Health and Sciences University, Portland, OR, USA.
Department of Neurology, Children's National Health System and School of Medicine, George Washington University, Washington, DC, USA.
Department of Pediatrics, Emory Children's Center, Emory University School of Medicine, Atlanta, GA, USA.
Epilepsy Foundation, Landover, MD, USA.
Center for Integrative Brain Research, Seattle Children's Research Institute, Seattle, WA, USA.
Departments of Pediatrics and Neurology, Seattle Children's Hospital, University of Washington, Washington, DC, USA.
Departments of Neurology and Pediatrics, UCSF Benioff Children's Hospital, University of California, San Francisco, CA, USA.
Department of History, College of Liberal Arts and Social Sciences, DePaul University, Chicago, IL, USA.
Saul Korey Department of Neurology, Montefiore Medical Center and Albert Einstein College of Medicine, Bronx, NY, USA.
Division of Neurology, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Department of Neurology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Epilepsy NeuroGenetics Initiative, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Department of Biomedical and Health Informatics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Department of Neurology, St Joseph's Hospital and Medical Center, Phoenix, AZ, USA.

Common data elements (CDEs) are standardized questions and answer choices that allow aggregation, analysis, and comparison of observations from multiple sources. Clinical CDEs are foundational for learning health care systems, a data‐driven approach to health care focused on continuous improvement of outcomes. We aimed to create clinical CDEs for pediatric epilepsy.

中文翻译：

小儿癫痫电子健康记录通用数据元素的设计和实施：学习型医疗保健系统的基础

通用数据元素 (CDE) 是标准化的问题和答案选择，允许聚合、分析和比较来自多个来源的观察结果。临床 CDE 是学习医疗保健系统的基础，这是一种数据驱动的医疗保健方法，专注于持续改善结果。我们的目标是创建小儿癫痫的临床 CDE。

更新日期：2020-12-24

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