Abstract

The right to benefit from science and its applications is one of the least studied, discussed and applied human rights. In the current time of globalization, characterized by the rapid advancement of science and its technological applications, as well as by increased flows of scientific data, there is a growing need to fully awaken the right of everyone to enjoy the benefits of science. This would enable science to better serve the humanitarian purposes of the law as well as foster scientific and technological development through data sharing. This article contributes to the awakening of the right by exploring it doctrinally with the aim of ascertaining its normative content by reference to the preparatory works of Article 15 of the International Covenant on Economic, Social and Cultural Rights and, especially, the subsequent state practice in its application. Based on the evidence, it will be argued that, today, the right to benefit from science has two aspects – first, the right to access scientific knowledge and information and, second, the right to benefit from scientific applications. It will be shown that the first aspect of the right is increasingly reflected in the practice of states and international organizations and has important implications for the regulation and sharing of big genomic data.

中文翻译：

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科学受益权及其对基因组数据共享的启示

摘要

从科学及其应用中受益的权利是研究，讨论和应用最少的人权之一。在当今的全球化时代，以科学及其技术应用的迅猛发展以及科学数据流量的增加为特征，人们日益需要充分唤醒所有人享有科学利益的权利。这将使科学能够更好地为法律的人道主义目的服务，并通过数据共享促进科学技术发展。本文通过对权利的觉​​醒来进行理论上的探索，以期通过参考《经济，社会，文化权利国际公约》第十五条的筹备工作来确定其规范性内容，尤其是在其中，随后的状态实践在其应用中。根据证据，人们会争辩说，今天，从科学中受益的权利有两个方面–第一，获得科学知识和信息的权利，第二，从科学应用中受益的权利。结果表明，权利的第一方面越来越多地体现在国家和国际组织的实践中，并且对大基因组数据的监管和共享具有重要意义。