ABSTRACT

Children with severe motor and intellectual disabilities (CSMID) face challenges in the transition from childhood to adult life after graduation, including changing health conditions caused by the acceleration of secondary disabilities, transition from paediatric to adult health care, and transition to places where they spend time after graduation from high school. However, no conceptual framework is currently available to explore this issue from a multifaceted perspective. This literature review aimed to fill this gap using the International Classification of Functioning, Disability and Health: Children & Youth version (ICF-CY) coding system. Through a descriptive analysis, ICF-CY codes were compared with the factors identified as relevant to CSMID by previous studies. The related ICF-CY codes were then extracted. Several codes within the ICF-CY domains of Body Functions and Body Structures, Activities, Participation, and Environmental Factors were thought to be important to understand CSMID. Some relevant Personal Factors were identified as well. Using the newly created conceptual framework, the support for CSMID can be more effective, allowing them to live a more fulfiling life.

摘要

患有严重运动和智力障碍的儿童（CSMID）在毕业后面临着从童年到成年生活过渡的挑战，包括继发性残疾加速导致的健康状况变化、从儿科到成人医疗保健的过渡以及到他们度过的地方的过渡高中毕业后的时间。然而，目前还没有概念框架可以从多方面的角度探讨这个问题。本文献综述旨在使用国际功能、残疾和健康分类：儿童和青年版 (ICF-CY) 编码系统来填补这一空白。通过描述性分析，将 ICF-CY 代码与先前研究确定为与 CSMID 相关的因素进行了比较。然后提取相关的 ICF-CY 代码。身体功能和身体结构、活动、参与和环境因素的 ICF-CY 领域内的几个代码被认为对于理解 CSMID 很重要。还确定了一些相关的个人因素。使用新创建的概念框架，可以更有效地支持 CSMID，让他们过上更充实的生活。