Introduction The public health measures imposed to contain Covid-19 during the first UK lockdown resulted in significant changes in the provision of community support and care for people with dementia. People with low prevalence and young-onset dementias often experience non-memory, behavioural or neuropsychiatric symptoms that require specialised support. Objective We explored the impact of the first Covid-19 lockdown on people living with low prevalence and young-onset dementia and their carers in the UK. Method An online survey, including eleven questions about the impact of the lockdown on both the person with dementia and their family caregivers was conducted. Participants were people living with dementia and caregivers who are members of the UK national-reach organisation Rare Dementia Support. Results 184 carers and 24 people with dementia completed the survey. People with dementia experienced worsening of cognitive symptoms (70%), ability to do things (62%) and well-being (57%) according to their carers. Carers also reported a reduction in the support received for caring (55%). 93% of carers of people living in care homes reported a reduction in their ability to provide care. 26% of carers reported changes in the medication of the person with dementia during the lockdown. 74% of people with dementia reported decreased ability to connect with people socially. Conclusions People with dementia experienced a worsening of dementia symptoms, removal of support and increased difficulty to connect with other people socially during the 1st wave of Covid-19. Carers encountered barriers to both receiving and providing support and a decline in their own mental health and well-being.

中文翻译：

---

英国首次Covid-19封锁对护理人员和低度痴呆症患者的影响：“罕见痴呆症支持”调查的结果

简介在首次英国封锁期间，为遏制Covid-19而采取的公共卫生措施导致对痴呆症患者的社区支持和护理提供的服务发生了重大变化。患病率低和新发性痴呆的人通常会遇到非记忆，行为或神经精神症状，需要专门的支持。目的我们研究了首次Covid-19锁定对英国低患病率和年轻型痴呆患者及其护理人员的影响。方法进行了一项在线调查，包括有关锁定对痴呆症患者及其家庭护理人员的影响的11个问题。参加者是痴呆症患者和看护者，他们是英国全国性组织Rare Dementia Support的成员。结果184名护老者和24名痴呆症患者完成了调查。根据照护者的情况，痴呆症患者的认知症状（70％），处事能力（62％）和幸福感（57％）恶化。照料者还报告说，获得照料的支持减少了（55％）。住在疗养院的护理人员中93％的人提供护理的能力有所下降。26％的护理人员报告了在锁定期间痴呆症患者的药物治疗发生了变化。74％的痴呆症患者报告了与人社交的能力下降。结论在Covid-19的第一波浪潮中，痴呆症患者经历了痴呆症症状的恶化，支持的消除以及与他人的社交联系上的增加的困难。