Abstract

The COVID-19 pandemic has taken a substantial human, social and economic toll globally, but its impact on Black/African Americans, Latinx, and American Indian/Alaska Native communities in the U.S. is unconscionable. As the U.S. continues to combat the current COVID-19 cycle and prepares for future pandemics, it will be critical to learn from and rectify past and contemporary wrongs. Drawing on experiences in genomic research and intersecting areas in medical ethics, health disparities, and human rights, this article considers three key COVID-19-related issues: research to identify remedies; testing, contact tracing and surveillance; and lingering health needs and disability. It provides a pathway for the future: community engagement to develop culturally-sensitive responses to the myriad genomic/bioethical dilemmas that arise, and the establishment of a Truth and Reconciliation Commission to transition the country from its contemporary state of segregation in healthcare and health outcomes into an equitable and prosperous society for all.

 抽象的

COVID-19 大流行在全球范围内造成了巨大的人员、社会和经济损失，但其对美国黑人/非裔美国人、拉丁裔和美洲印第安人/阿拉斯加原住民社区的影响是不合理的。随着美国继续抗击当前的 COVID-19 周期并为未来的大流行做好准备，从过去和当代的错误中吸取教训并纠正错误至关重要。本文借鉴基因组研究以及医学伦理、健康差异和人权等交叉领域的经验，考虑了与 COVID-19 相关的三个关键问题：确定补救措施的研究；检测、接触者追踪和监视；以及挥之不去的健康需求和残疾。它为未来提供了一条途径：社区参与，针对出现的无数基因组/生物伦理困境制定文化敏感的应对措施，并建立真相与和解委员会，以使该国摆脱当前医疗保健和健康结果方面的隔离状态进入一个人人平等和繁荣的社会。