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At Home With Data: Family Engagements With Data Involved in Type 1 Diabetes Management
Journal of the Learning Sciences ( IF 6.083 ) Pub Date : 2019-09-25 , DOI: 10.1080/10508406.2019.1666011
Victor R. Lee 1, 2 , Ilana Dubovi 1, 3
Affiliation  

This article reports on an exploratory study of quantitative data use situated in families’ management routines while taking care of a child with Type 1 diabetes (T1D). T1D treatment requires frequent measurement and recording of numerical data about blood sugar concentration, nutritional intake, and insulin dosage at the child’s home, at school, and at other activities. We analyze coordination work between family members and others involved in the care of children with T1D using the lens of distributed cognition, and we introduce the notion of a data catchment to refer to the pathways of data flow and information storage within and between multiple agents and spaces. Interviews and observations reveal three main features of storage and use in data catchments: First, there is a great variability in how data move and are retained to enable communication between family members and others. Second, families tended to focus more on individual data points and less on aggregate readings despite some indications of ability to narrate through aggregate readings. Third, families engage in recurrent conversations and sometimes use novel artifacts to make numerical values meaningful to children with T1D. Implications for understanding this space of practice as constituting a data catchment are discussed.



中文翻译:

在家中使用数据:涉及1型糖尿病管理的数据的家庭参与

本文报告了一项探索性研究,该研究涉及在照顾1型糖尿病(T1D)儿童的家庭日常管理中使用的定量数据。T1D治疗需要经常测量和记录有关儿童家里,学校和其他活动中血糖浓度,营养摄入和胰岛素剂量的数值数据。我们使用分布式认知的视角分析家庭成员与其他参与T1D儿童照护的人之间的协调工作,并引入数据收集的概念来指代多个代理之间以及之间的数据流和信息存储路径。空格。访谈和观察揭示了数据收集区中存储和使用的三个主要特征:首先,数据如何移动和保留以实现家庭成员与他人之间的通信存在很大的差异。其次,尽管有些迹象表明家庭有能力通过汇总读数进行叙述,但家庭倾向于将重点更多地放在单个数据点上,而较少关注汇总读数。第三,家庭经常进行对话,有时会使用新颖的人工制品来使数值对患有T1D的儿童有意义。讨论了将这种实践空间理解为构成数据收集区的含义。家庭经常进行对话,有时会使用新颖的人工制品来使数值对患有T1D的儿童有意义。讨论了将这种实践空间理解为构成数据收集区的含义。家庭经常进行对话,有时会使用新颖的人工制品来使数值对患有T1D的儿童有意义。讨论了将这种实践空间理解为构成数据收集区的含义。

更新日期:2019-09-25
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