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Who gets to be born? The anticipatory governance of pre-implantation genetic diagnosis technology in the United Kingdom from 1978–2001
Journal of Responsible Innovation ( IF 3.370 ) Pub Date : 2020-08-06 , DOI: 10.1080/23299460.2020.1802544
Shannon N. Conley 1
Affiliation  

ABSTRACT

This paper focuses on explicating and understanding important State and societally-wide capacities of the nation-state to govern emerging technologies. It examines the governance around pre-implantation genetic diagnosis (PGD) from 1978-2001 in the United Kingdom. When analyzed as a whole, the informal and formal mechanisms in British society suggest a latent form of proto-anticipatory governance around PGD technology, and that there are important and understudied linkages between anticipatory governance (AG) and Responsible Innovation (RI) that need to be explored. Additionally, I contend that an overlooked element of anticipatory governance, ‘ensembelization,' should be considered the fourth capacity of anticipatory governance, just as ‘responsiveness’ is the fourth dimension of RI. The ongoing case of PGD governance, and more recently, gene editing governance, will perhaps be one of the most challenging, provocative, and important places for development and deployment of RI and AG capacities.



中文翻译:

谁出生?1978-2001年英国的植入前基因诊断技术的预期治理

摘要

本文着重于阐述和理解民族国家管理新兴技术的重要能力以及整个国家的社会能力。它研究了1978年至2001年英国的植入前遗传学诊断(PGD)的治理。当作为一个整体进行分析,在英国社会的正式和非正式机制建议的潜在形式-预期管理围绕PGD技术,并且需要探索预期治理(AG)与负责任创新(RI)之间重要且未被充分研究的联系。此外,我认为,应将预期治理的一个被忽略的要素“整体化”视为预期治理的第四种能力,就像“响应能力”是RI的第四维度一样。正在进行的PGD治理案例,以及最近的基因编辑治理案例,可能会成为RI和AG能力发展和部署中最具挑战性,最具挑衅性和重要意义的场所之一。

更新日期:2020-08-06
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