Background

Satisfaction and stigmatization are experienced differently in different cultural contests, especially, in patients with dermatological diseases affecting visible body parts. Reports in Arabic countries remain rare and very appealing in a multicultural population.

Aims

To evaluate feeling of stigmatization and satisfaction with life in Arabic patients with psoriasis and identify predictors of feeling of stigmatization and satisfaction with life.

Methods

In a cross-sectional study design, Arabic patients with psoriasis completed the 6-item stigmatization scale and the satisfaction with life scale. Univariate and forward stepwise multivariate linear regression analyses were used to identify predictors of feeling of stigmatization and satisfaction with life. Covariates included patients' demographics (age, gender and education level), disease-related factors (disease severity, visibility, duration, and impact on quality of life) and patient-related factors (illness acceptance and dermatology self-care education level).

Results

In total, 199 Arabic psoriatic patients were included in the study. Despite feeling highly stigmatized by their skin disease [mean (95% Confidence Intervals (CI)) of 7.0 (6.3–7.7)], psoriasis patients were generally positive about their overall satisfaction with life (mean (95% CI) of 21.0 (20.0–22.3). Impaired quality of life was the strongest predictor of both higher feeling of stigmatization (β-coefficient 0.39, 95% CI 0.30, 0.47) and less satisfaction with life (−0.36, 95% CI −0.53, −0.20). Higher levels of dermatology self-care education significantly predicted a lower feeling of stigmatization (−0.09, 95% CI −0.16, −0.01). Older patients (0.18, 95% CI 0.05, 0.30) and those with higher illness acceptance levels (0.14, 95% CI 0.03, 0.24) were more satisfied with life.

Conclusions

A level of stigmatization was detected in most psoriatic patients including the satisfied ones. Patients with more impaired quality of life experienced higher level of stigmatization and less satisfaction with life. These findings further enforce the multidisciplinary approach in psoriatic patients and highlight the unmet need to include psychologist in the therapeutic algorithm.

中文翻译：

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阿拉伯银屑病患者的污名感和生活满意度

 背景

在不同的文化竞赛中，满意度和污名化的体验不同，尤其是患有影响可见身体部位的皮肤病的患者。阿拉伯国家的报道仍然很少见，而且在多元文化人群中非常有吸引力。

 目标

评估阿拉伯牛皮癣患者的耻辱感和生活满意度，并确定耻辱感和生活满意度的预测因素。

 方法

在一项横断面研究设计中，阿拉伯银屑病患者完成了 6 项耻辱量表和生活满意度量表。使用单变量和向前逐步多元线性回归分析来确定耻辱感和生活满意度的预测因素。协变量包括患者的人口统计数据（年龄、性别和教育水平）、疾病相关因素（疾病严重程度、可见性、持续时间和对生活质量的影响）和患者相关因素（疾病接受度和皮肤科自我保健教育水平）。

 结果

该研究总共纳入了 199 名阿拉伯银屑病患者。尽管银屑病患者感到自己的皮肤病受到高度耻辱[平均值（95% 置信区间 (CI)] 为 7.0 (6.3–7.7)]，但银屑病患者对其总体生活满意度普遍持积极态度（平均值（95% CI）为 21.0 (20.0) –22.3）。生活质量受损是污名感较高（β系数 0.39，95% CI 0.30，0.47）和生活满意度较低（−0.36，95% CI -0.53，−0.20）的最强预测因素。较高水平的皮肤科自我护理教育显着预测老年患者（0.18，95% CI 0.05，0.30）和疾病接受水平较高的患者（0.14）的耻辱感较低（-0.09，95% CI -0.16，-0.01）。 , 95% CI 0.03, 0.24) 对生活更加满意。

 结论

大多数银屑病患者（包括满意的患者）都存在一定程度的耻辱感。生活质量受损程度较高的患者遭受的耻辱程度较高，对生活的满意度较低。这些发现进一步强化了银屑病患者的多学科治疗方法，并强调了将心理学家纳入治疗方案的需求尚未得到满足。