ABSTRACT

To describe current rehabilitation models of care and programmes, in Australia and internationally, related to family-centred care, psychosocial support, and transitions used for children and youth who have sustained major traumatic brain and/or spinal cord injuries. Fourteen services were interviewed, including eight medical rehabilitation services, three community-based rehabilitation services, two insurance services, and one state-wide education service provider. Semi-structured interviews were transcribed and analysed using qualitative content analysis in NVivo. Compared to the number of services supporting children and youth with traumatic brain injury, a very limited number supported those with spinal cord injury. Although valued and often included in the model of care, family-centred care was rarely systematically evaluated by the services. Most services provided psychosocial and transition support to children and youth, and their families in the short-term post-injury, but not in the long-term. Several challenges also hindered the smooth delivery of these support services, including poor communication between service providers. These findings show that services aimed to provide the best possible care to these children and youth, and their families; guided by rehabilitation models of care. However, challenges persist with regards to delivering family-centred care, coordinating return to school, and providing long-term support for psychosocial problems and transition.

摘要

描述当前在澳大利亚和国际上与以家庭为中心的护理、心理社会支持和用于遭受严重创伤性脑和/或脊髓损伤的儿童和青少年的过渡有关的护理和计划的康复模式。采访了 14 个服务机构，包括 8 个医疗康复服务机构、3 个社区康复服务机构、2 个保险服务机构和 1 个全州教育服务提供商。使用 NVivo 中的定性内容分析对半结构化访谈进行转录和分析。与支持患有创伤性脑损伤的儿童和青少年的服务数量相比，支持脊髓损伤患者的服务数量非常有限。尽管重视并经常包含在护理模式中，但以家庭为中心的护理很少得到服务机构的系统评估。大多数服务在短期内为儿童和青少年及其家人提供心理社会和过渡支持，但不是长期的。一些挑战也阻碍了这些支持服务的顺利交付，包括服务提供商之间的沟通不畅。这些调查结果表明，服务旨在为这些儿童和青少年及其家人提供最好的照顾；以康复护理模式为指导。然而，在提供以家庭为中心的护理、协调返校以及为心理社会问题和过渡提供长期支持方面仍然存在挑战。一些挑战也阻碍了这些支持服务的顺利交付，包括服务提供商之间的沟通不畅。这些调查结果表明，服务旨在为这些儿童和青少年及其家人提供最好的照顾；以康复护理模式为指导。然而，在提供以家庭为中心的护理、协调返校以及为心理社会问题和过渡提供长期支持方面仍然存在挑战。一些挑战也阻碍了这些支持服务的顺利交付，包括服务提供商之间的沟通不畅。这些调查结果表明，服务旨在为这些儿童和青少年及其家人提供最好的照顾；以康复护理模式为指导。然而，在提供以家庭为中心的护理、协调返校以及为心理社会问题和过渡提供长期支持方面仍然存在挑战。