Pregnancy termination for fetal anomaly (TFA) is a unique experience that can cause women to develop long‐term complicated grief. Although a woman's experience with her healthcare providers has been previously identified as an important factor in coping, studies have shown that many women report their health care as lacking to some extent. Given the overlap in women's needs and the practice scope of a genetic counselor (GC), this study aimed to examine how genetic counseling may impact coping and explore women's expectations of GCs pre‐ and post‐TFA. An online survey, which included the brief COPE and the short version of the Perinatal Grief Scale, was distributed among private online support groups. Appropriate statistical analysis tools, such as the Wilcoxon rank‐sum and t test, were utilized for quantitative analysis of the 124 responses, and inductive content analysis was utilized for qualitative analysis. Of those who underwent TFA within the last two years, women who saw a GC utilized active coping, planning, and positive reframing significantly more than women who did not see a GC (p = 0.001, p = 0.031, p = 0.027, respectively). GCs were perceived to have a positive impact on coping when providing information, objective care, emotional support, support resources, and follow‐up care; these practices encouraged confidence in their personal decision‐making and gave women hope for the future. This study not only identified key counseling roles for GCs prior to a TFA, but also demonstrated that genetic counseling prior to TFA may be beneficial to coping. Further studies are warranted to explore the needs of a more diverse population and to identify appropriate genetic counseling training methods to support women pursuing TFA.

中文翻译：

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遗传咨询对妇女因胎儿异常终止妊娠后悲伤和应对的影响

因胎儿异常而终止妊娠 (TFA) 是一种独特的经历，会导致女性长期陷入复杂的悲痛之中。尽管以前女性与医疗保健提供者的经历被认为是应对的重要因素，但研究表明，许多女性报告说她们在某种程度上缺乏医疗保健。鉴于女性需求和遗传咨询师 (GC) 的执业范围存在重叠，本研究旨在研究遗传咨询如何影响应对，并探讨女性在 TFA 前后对 GC 的期望。在线调查包括简短的 COPE和围产期悲伤量表的简短版本，在私人在线支持小组中分发。适当的统计分析工具，例如 Wilcoxon rank-sum 和t检验用于对 124 个回答进行定量分析，归纳内容分析用于定性分析。在过去两年内接受过 TFA 的女性中，看到 GC 的女性比没有看到 GC 的女性更积极地应对、计划和积极重构（p  = 0.001，p  = 0.031，p = 0.027，分别）。在提供信息、客观护理、情感支持、支持资源和后续护理时，GCs 被认为对应对产生积极影响；这些做法增强了她们对个人决策的信心，并给了妇女对未来的希望。这项研究不仅确定了 TFA 之前 GC 的关键咨询作用，而且还证明了 TFA 之前的遗传咨询可能有利于应对。需要进一步的研究来探索更多样化人群的需求，并确定合适的遗传咨询培训方法来支持追求 TFA 的女性。