Abstract

Purpose

Endometriosis is a chronic, inflammatory condition. The aim was to describe the self-reported disease characteristics and factors associated with the use of different treatment modalities among women with surgically diagnosed endometriosis.

Method

A cross-sectional online survey featuring 58 fixed-response items measuring disease characteristics, self-efficacy, health service usage, and treatment approaches was conducted. Logistic regression was used to explore the factors associated with different treatment modalities.

Results

Complete data were available from 620 respondents. Average delay to diagnosis was 6.4 years. Despite medical and surgical intervention, 65.8% reported dysmenorrhea and 61.1% reported dyspareunia, and 82.7% reported chronic pelvic pain in the last 3 months. Respondents had consulted an average of three different health practitioner specialties in the previous 12 months for their endometriosis.

Discussion

A chronic disease management plan (CDMP) may be a useful mechanism to coordinate multidisciplinary care among women who experience ongoing symptoms.

中文翻译：

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管理子宫内膜异位症：对澳大利亚女性的横断面调查

摘要

目的

子宫内膜异位症是一种慢性炎症性疾病。目的是描述在手术诊断为子宫内膜异位症的女性中与使用不同治疗方式相关的自我报告的疾病特征和因素。

方法

进行了一项横断面在线调查，其中包含 58 个固定反应项目，测量疾病特征、自我效能、卫生服务使用和治疗方法。逻辑回归用于探索与不同治疗方式相关的因素。

结果

620 名受访者提供了完整的数据。诊断的平均延迟为 6.4 年。尽管进行了药物和手术干预，65.8% 的人报告痛经，61.1% 的人报告性交困难，82.7% 的人报告过去 3 个月的慢性盆腔疼痛。在过去的 12 个月中，受访者平均咨询了三个不同的健康从业者专业的子宫内膜异位症。

讨论

慢性病管理计划 (CDMP) 可能是一种有用的机制，可以在经历持续症状的女性中协调多学科护理。