Abstract

Objective

Monitoring technology may assist in managing self-injurious behavior (SIB), a pervasive concern in autism spectrum disorder (ASD). Affiliated stakeholder perspectives should be considered to design effective and accepted SIB monitoring methods. We examined caregiver experiences to generate design guidance for SIB monitoring technology.

Materials and Methods

Twenty-three educators and 16 parents of individuals with ASD and SIB completed interviews or focus groups to discuss needs related to monitoring SIB and associated technology use.

Results

Qualitative content analysis of participant responses revealed 7 main themes associated with SIB and technology: triggers, emotional responses, SIB characteristics, management approaches, caregiver impact, child/student impact, and sensory/technology preferences.

Discussion

The derived themes indicated areas of emphasis for design at the intersection of monitoring and SIB. Systems design at this intersection should consider the range of manifestations of and management approaches for SIB. It should also attend to interactions among children with SIB, their caregivers, and the technology. Design should prioritize the transferability of physical technology and behavioral data as well as the safety, durability, and sensory implications of technology.

Conclusions

The collected stakeholder perspectives provide preliminary groundwork for an SIB monitoring system responsive to needs as articulated by caregivers. Technology design based on this groundwork should follow an iterative process that meaningfully engages caregivers and individuals with SIB in naturalistic settings.

中文翻译：

---

了解自闭症谱系障碍中自伤行为的经历：对监测技术设计的启示

摘要

客观的

监测技术可能有助于管理自伤行为 (SIB)，这是自闭症谱系障碍 (ASD) 中普遍关注的问题。应考虑附属利益相关者的观点来设计有效且可接受的 SIB 监控方法。我们检查了护理人员的经验，以生成 SIB 监测技术的设计指南。

材料和方法

23 名教育工作者和 16 名 ASD 和 SIB 患者的家长完成了访谈或焦点小组讨论，以讨论与监测 SIB 和相关技术使用相关的需求。

结果

参与者反应的定性内容分析揭示了与 SIB 和技术相关的 7 个主要主题：触发因素、情绪反应、SIB 特征、管理方法、照顾者影响、儿童/学生影响和感官/技术偏好。

讨论

派生的主题表明了监测和 SIB 交叉点的设计重点领域。该交叉点的系统设计应考虑 SIB 的表现形式和管理方法的范围。它还应该关注患有 SIB 的儿童、他们的照顾者和技术之间的互动。设计应优先考虑物理技术和行为数据的可转移性以及技术的安全性、耐用性和感官影响。

结论

收集到的利益相关者的观点为 SIB 监测系统提供了初步基础，以满足护理人员所阐明的需求。基于此基础工作的技术设计应遵循一个迭代过程，使护理人员和患有 SIB 的个人有意义地参与到自然环境中。