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Quality of communication life in people with aphasia: Implications for intervention
Annals of Indian Academy of Neurology ( IF 1.9 ) Pub Date : 2020-09-01 , DOI: 10.4103/aian.aian_557_20 Grama N Rangamani 1 , Hannah M Judovsky 1
Background and Aims: The main goals were to determine the effectiveness of two commonly used communication-related Quality of Life (QoCL) measures, and the impact of aphasia-related factors on quality of life (QoL) and QoCL in persons with aphasia (PWAs). Method: Twenty-one PWAs ranging from 47 to 91 years of age with post-onset periods of 2 months to 14 years were tested using standardized and criterion-measure tools to assess their language and cognitive functions, QoL, and QoCL. Additionally, participants completed a demographics questionnaire, which also included information on their stroke and the kinds of therapies they had received. Assessments were conducted over two sessions with randomized order of test administrations to control fatigue and order effects. Results and Discussions: Correlation-matrix was used to determine the strength of relations between test measures. The impact of QoL related factors (viz., aphasia severity, cognitive functioning, time post-onset, and therapy received) on QoCL was examined using ANOVAs. The ASHA Quality of Communication Life Scale (ASHA-QCL) had more significant correlations with other QoL measures than the ASHA-Functional Assessment of Communication Skills (ASHA-FACS). Aphasia severity, cognitive deficits, and therapy received contributed significantly to QoL and QoCL in PWAs. Conclusions: Evaluating overall QoL may not fully reveal the QoCL in PWAs. Measuring QoCL specifically is crucial in aphasia interventions, and it is equally important to use sensitive tools that can capture the QoCL effectively. ASHA-QCL was more effective than ASHA-FACS in capturing the QoCL. QoCL must be considered even when working with PWAs with severe aphasias and/or mild cognitive deficits.
中文翻译：
失语症患者的沟通生活质量：干预的意义
背景和目的：主要目标是确定两种常用的沟通相关生活质量 (QoCL) 测量方法的有效性，以及失语症相关因素对失语症患者 (PWA) 生活质量 (QoL) 和 QoCL 的影响）。方法：使用标准化和标准测量工具对 21 名年龄从 47 岁到 91 岁、发病后 2 个月到 14 年的 PWA 进行测试，以评估他们的语言和认知功能、生活质量和生活质量。此外，参与者还完成了人口统计调查问卷，其中还包括有关中风和接受的治疗类型的信息。评估分两次进行，测试管理的顺序随机，以控制疲劳和顺序效应。结果和讨论：相关矩阵用于确定测试测量之间的关系强度。使用方差分析检查生活质量相关因素（即失语严重程度、认知功能、发病后时间和接受的治疗）对生活质量的影响。与 ASHA 沟通技能功能评估 (ASHA-FACS) 相比，ASHA 沟通生活质量量表 (ASHA-QCL) 与其他生活质量测量的相关性更显着。失语症严重程度、认知缺陷和接受的治疗对 PWA 中的 QoL 和 QoCL 有显着影响。结论：评估整体 QoL 可能无法完全揭示 PWA 中的 QoCL。具体测量 QoCL 在失语症干预中至关重要，使用能够有效捕获 QoCL 的敏感工具也同样重要。ASHA-QCL 在捕获 QoCL 方面比 ASHA-FACS 更有效。即使在处理患有严重失语症和/或轻度认知缺陷的 PWA 时，也必须考虑 QoCL。
更新日期：2020-10-06
Annals of Indian Academy of Neurology ( IF 1.9 ) Pub Date : 2020-09-01 , DOI: 10.4103/aian.aian_557_20 Grama N Rangamani 1 , Hannah M Judovsky 1
Affiliation
Background and Aims: The main goals were to determine the effectiveness of two commonly used communication-related Quality of Life (QoCL) measures, and the impact of aphasia-related factors on quality of life (QoL) and QoCL in persons with aphasia (PWAs). Method: Twenty-one PWAs ranging from 47 to 91 years of age with post-onset periods of 2 months to 14 years were tested using standardized and criterion-measure tools to assess their language and cognitive functions, QoL, and QoCL. Additionally, participants completed a demographics questionnaire, which also included information on their stroke and the kinds of therapies they had received. Assessments were conducted over two sessions with randomized order of test administrations to control fatigue and order effects. Results and Discussions: Correlation-matrix was used to determine the strength of relations between test measures. The impact of QoL related factors (viz., aphasia severity, cognitive functioning, time post-onset, and therapy received) on QoCL was examined using ANOVAs. The ASHA Quality of Communication Life Scale (ASHA-QCL) had more significant correlations with other QoL measures than the ASHA-Functional Assessment of Communication Skills (ASHA-FACS). Aphasia severity, cognitive deficits, and therapy received contributed significantly to QoL and QoCL in PWAs. Conclusions: Evaluating overall QoL may not fully reveal the QoCL in PWAs. Measuring QoCL specifically is crucial in aphasia interventions, and it is equally important to use sensitive tools that can capture the QoCL effectively. ASHA-QCL was more effective than ASHA-FACS in capturing the QoCL. QoCL must be considered even when working with PWAs with severe aphasias and/or mild cognitive deficits.
中文翻译：
失语症患者的沟通生活质量：干预的意义
背景和目的：主要目标是确定两种常用的沟通相关生活质量 (QoCL) 测量方法的有效性，以及失语症相关因素对失语症患者 (PWA) 生活质量 (QoL) 和 QoCL 的影响）。方法：使用标准化和标准测量工具对 21 名年龄从 47 岁到 91 岁、发病后 2 个月到 14 年的 PWA 进行测试，以评估他们的语言和认知功能、生活质量和生活质量。此外，参与者还完成了人口统计调查问卷，其中还包括有关中风和接受的治疗类型的信息。评估分两次进行，测试管理的顺序随机，以控制疲劳和顺序效应。结果和讨论：相关矩阵用于确定测试测量之间的关系强度。使用方差分析检查生活质量相关因素（即失语严重程度、认知功能、发病后时间和接受的治疗）对生活质量的影响。与 ASHA 沟通技能功能评估 (ASHA-FACS) 相比，ASHA 沟通生活质量量表 (ASHA-QCL) 与其他生活质量测量的相关性更显着。失语症严重程度、认知缺陷和接受的治疗对 PWA 中的 QoL 和 QoCL 有显着影响。结论：评估整体 QoL 可能无法完全揭示 PWA 中的 QoCL。具体测量 QoCL 在失语症干预中至关重要，使用能够有效捕获 QoCL 的敏感工具也同样重要。ASHA-QCL 在捕获 QoCL 方面比 ASHA-FACS 更有效。即使在处理患有严重失语症和/或轻度认知缺陷的 PWA 时，也必须考虑 QoCL。
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