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"No one could calm him down": Mothers' experience of autism diagnosis and obtainment of resources in an urban public school district.
Families, Systems, & Health ( IF 1.2 ) Pub Date : 2020-09-01 , DOI: 10.1037/fsh0000527
Norah Johnson 1 , Phonethip Sangasy 1 , Karen Robinson 1
Affiliation  

Introduction: The purpose of this study was to explore the experience of accessing autism diagnosis and resources in a Midwest urban public school district for diverse mothers of children with autism spectrum disorder. Method: We employed thematic analysis using narrative inquiry methodology to analyze the data from 9 mothers (n = 5 African American, n = 2 Hispanic, and n = 2 White) who participated in a focus group. Results: Three themes were identified by the researchers: (a) late medical diagnosis (subthemes: problems that parents didn't perceive as signs of autism spectrum disorder, making comparisons to other siblings or children), (b) negative communication experiences (subthemes: husband and wife, parent and educational professionals), and (c) coping strategies (subthemes: resources, prayer). Discussion: The mothers' narratives indicated a strong need for advocacy and parent-school partnership. (PsycInfo Database Record (c) 2020 APA, all rights reserved).

中文翻译:

“没有人能让他平静下来”:母亲在城市公立学区进行自闭症诊断和获得资源的经验。

简介:本研究的目的是探索在中西部城市公立学区为患有自闭症谱系障碍儿童的各种母亲获得自闭症诊断和资源的经验。方法:我们采用叙述性询问方法进行主题分析,以分析参加焦点小组研究的9位母亲(n = 5的非洲裔美国人,n = 2的西班牙裔美国人,n = 2的白人)的数据。结果:研究人员确定了三个主题:(a)晚期医学诊断(子主题:父母没有将其视为自闭症谱系障碍的症状,与其他兄弟姐妹或孩子进行比较),(b)负面的交流经历(子主题) :丈夫和妻子,父母和教育专业人员),以及(c)应对策略(子主题:资源,祈祷)。讨论:母亲们的 叙述表明强烈需要倡导和家长与学校之间的伙伴关系。(PsycInfo数据库记录(c)2020 APA,保留所有权利)。
更新日期:2020-09-01
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