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Leveraging Interdisciplinary Teams to Develop and Implement Secure Websites for Behavioral Research: Applied Tutorial.
Journal of Medical Internet Research ( IF 5.8 ) Pub Date : 2020-09-23 , DOI: 10.2196/19217
Christie L Martin 1 , Eydie N Kramer-Kostecka 2 , Jennifer A Linde 3 , Sarah Friend 1 , Vanessa R Zuroski 4 , Jayne A Fulkerson 1
Affiliation  

Behavioral researchers are increasingly using interactive digital platforms, either as standalone or supplementary intervention tools, to facilitate positive changes in research participants’ health habits. Research-oriented interactive websites optimally offer a variety of participatory mediums, such as blogs, user-driven content, or health activities. Owing to the multidirectional features of interactive websites, and a corresponding need to protect research participants’ identity and data, it is paramount that researchers design ethical platforms that ensure privacy and minimize loss of anonymity and confidentiality. Authentication (ie, digital verification of one’s identity) of interactive sites is one viable solution to these concerns. Although previous publications have addressed ethical requirements related to authenticated platforms, few applied guidelines in the literature facilitate adherence to ethical principles and legally compliant study protocols during all phases of research website creation (feasibility, design, implementation, and maintenance). Notably, to remain compliant with ethical standards and study protocols, behavioral researchers must collaborate with interdisciplinary teams to ensure that the authenticated site remains secure and usable in all stages of the project. In this tutorial, we present a case study conducted at a large research university. Through iterative and practical recommendations, we detail lessons learned from collaborations with the Institutional Review Board, legal experts, and information technology teams. Although the intricacies of our applied tutorial may require adaptations based on each institution’s technological capacity, we are confident that the core takeaways are universal and thus useful to behavioral researchers creating ethically responsible and compliant interactive websites.

This is the abstract only. Read the full article on the JMIR site. JMIR is the leading open access journal for eHealth and healthcare in the Internet age.


中文翻译:

利用跨学科团队为行为研究开发和实施安全网站:应用教程。

行为研究人员越来越多地使用交互式数字平台作为独立或补充干预工具,以促进研究参与者健康习惯的积极变化。以研究为导向的交互式网站以最佳方式提供各种参与性媒体,例如博客、用户驱动的内容或健康活动。由于交互式网站的多向特性,以及保护研究参与者身份和数据的相应需求,研究人员设计道德平台以确保隐私并最大限度地减少匿名和机密性损失是至关重要的。交互式站点的认证(即个人身份的数字验证)是解决这些问题的一种可行解决方案。尽管以前的出版物已经解决了与认证平台相关的道德要求,文献中很少有应用指南有助于在研究网站创建的所有阶段(可行性、设计、实施和维护)遵守道德原则和合法的研究协议。值得注意的是,为了遵守道德标准和研究协议,行为研究人员必须与跨学科团队合作,以确保经过身份验证的站点在项目的所有阶段都保持安全和可用。在本教程中,我们展示了一个在大型研究型大学进行的案例研究。通过迭代和实用的建议,我们详细介绍了与机构审查委员会、法律专家和信息技术团队合作的经验教训。尽管我们应用教程的复杂性可能需要根据每个机构的技术能力进行调整,

这只是摘要。阅读 JMIR 网站上的完整文章。JMIR 是互联网时代电子健康和医疗保健领域领先的开放获取期刊。
更新日期:2020-09-23
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