Background: The involvement of patient research partners (PRPs) in research aims to safeguard the needs of patient groups and produce new interventions that are developed based on patient input. Myocardial infarction with nonobstructive coronary arteries (MINOCA), unlike acute myocardial infarction (MI) with obstructive coronary arteries, is presented with no significant obstructive coronary artery disease. Patients with this diagnosis are a subset of those diagnosed with traditional MI and often need more psychological support, something that is presently not established in the current treatment scheme in Swedish health care or elsewhere, to our knowledge. An internet-delivered intervention might offer patients with MINOCA the opportunity to access a psychological treatment that is tailored to their specific needs after MINOCA and could therefore supplement the existing medical care in an easily accessible format. Objective: This paper aims to describe the development of a therapist-guided, internet-delivered psychological intervention designed specifically for patients with MINOCA. Methods: The study used a participatory design that involved 7 PRPs diagnosed with MINOCA who collaborated with a team consisting of researchers, cardiologists, and psychologists. Intervention content was developed iteratively and presented to the PRPs across several prototypes, each continually adjusted and redesigned according to the feedback received. The intervention and experience of it were discussed by PRPs in a final meeting and then presented to a panel of 2 clinical psychologists and a cardiologist for further input. Results: The outcome of the collaboration between PRPs and the research group produced a web-based psychological 9-step program focusing on stress, worry, and valued action. The input from PRPs contributed substantially to the therapy content, homework tasks, interactive activities, multimedia, and design presentation. Conclusions: Working with PRPs to develop an intervention for people with MINOCA produced a web-based intervention that can be further evaluated with the goal of offering a new psychological treatment option to a patient group currently without one. Direct contribution from PRPs enabled us to obtain relevant, insightful, and valuable feedback that was put towards the overall design and content of the intervention.

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中文翻译：

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为非阻塞性冠状动脉心肌梗死患者设计基于网络的心理干预：以用户为中心的设计方法。


背景：患者研究合作伙伴（PRP）参与研究的目的是保障患者群体的需求，并根据患者的意见制定新的干预措施。与阻塞性冠状动脉的急性心肌梗死（MI）不同，非阻塞性​​冠状动脉心肌梗死（MINOCA）没有明显的阻塞性冠状动脉疾病。这种诊断的患者是传统心肌梗死患者的一部分，通常需要更多的心理支持，据我们所知，瑞典医疗保健或其他地方的当前治疗方案目前尚未建立这种支持。互联网提供的干预措施可能会为 MINOCA 患者提供获得心理治疗的机会，该治疗是根据 MINOCA 患者的特定需求量身定制的，因此可以以易于获取的形式补充现有的医疗护理。目的：本文旨在描述专为 MINOCA 患者设计的治疗师指导、互联网提供的心理干预的开发。方法：该研究采用参与式设计，涉及 7 名被诊断为 MINOCA 的 PRP，他们与由研究人员、心脏病专家和心理学家组成的团队合作。干预内容是迭代开发的，并通过多个原型呈现给 PRP，每个原型根据收到的反馈不断调整和重新设计。 PRP 在最后一次会议上讨论了干预措施和经验，然后提交给由 2 名临床心理学家和 1 名心脏病专家组成的小组以寻求进一步的意见。 结果：PRP 和研究小组之间的合作成果产生了一个基于网络的心理 9 步计划，重点关注压力、担忧和有价值的行动。 PRP 的输入对治疗内容、家庭作业、互动活动、多媒体和设计演示做出了重大贡献。结论：与 PRP 合作为 MINOCA 患者开发一种干预措施，产生了一种基于网络的干预措施，可以进一步评估该干预措施，目的是为目前没有心理治疗选择的患者群体提供一种新的心理治疗选择。 PRP 的直接贡献使我们能够获得针对干预措施的整体设计和内容的相关、有洞察力和有价值的反馈。


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