BACKGROUND Advances in paediatric care have contributed to an increasing survival of children with complex heart disease. Yet, life-saving management demands prolonged inpatient admissions, which contribute to emotional and psychological distress for parents and other caregivers in a role of main custody. AIM The purpose of this study was to identify, appraise and synthesise qualitative studies exploring caregivers' experiences of paediatric inpatient cardiac services, generating an understanding of their needs in hospital and informing priorities for change in healthcare delivery. METHODS Searches were conducted in Medline, Allied and Complimentary Medicine Database, Cumulative Index of Nursing and Allied Health Literature, EMCARE, Scopus, PsychINFO, Proquest, OpenGrey and ETHOs from 2008-2019, reflecting recent advances in cardiac healthcare. Articles were selected using predetermined eligibility criteria dictating qualitative inquiry into caregiver perspectives whilst their child received hospital-based interventions for heart disease. All eligible studies underwent quality appraisal. Framework synthesis was used to analyse and summarise findings. RESULTS Twenty-seven studies involving 689 caregivers from 11 countries were included. Three overarching themes were identified: 'emotional capacity to care', 'practicalities of caring', and 'the bigger picture of caring'. CONCLUSIONS Through analysis and summary of qualitative primary research, this review captures the emotional challenges that caregivers face and practicalities of undertaking a caregiver role, whilst looking after their child with heart disease in hospital. The results widen the context of the caregiver role, encompassing the whole family unit beyond the hospital environment. This review exposes the impact of these challenges on caregiver competence, wellbeing and attachment to their unwell child, informing priorities for development of family-centred paediatric inpatient cardiac services.

中文翻译：

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儿科住院心脏服务的护理人员经验：定性系统评价

背景技术儿科护理的进步已经促进了患有复杂心脏病的儿童的生存率增加。然而，挽救生命的管理需要延长住院时间，这会导致父母和其他主要监护人的情绪和心理困扰。目的 本研究的目的是确定、评估和综合定性研究，探索护理人员在儿科住院心脏服务方面的经验，了解他们在医院的需求，并为改变医疗保健服务的优先事项提供信息。方法 2008-2019 年在 Medline、联合和免费医学数据库、护理和联合健康文献累积索引、EMCARE、Scopus、PsychINFO、Proquest、OpenGrey 和 ETHOs 中进行搜索，反映了心脏保健的最新进展。文章是使用预先确定的资格标准选择的，这些标准规定了对照顾者观点的定性调查，同时他们的孩子接受了基于医院的心脏病干预措施。所有符合条件的研究均经过质量评估。框架综合用于分析和总结发现。结果 纳入了 27 项研究，涉及来自 11 个国家的 689 名护理人员。确定了三个总体主题：“关怀的情感能力”、“关怀的实用性”和“关怀的大局”。结论 通过对定性初步研究的分析和总结，本综述捕捉了看护者面临的情感挑战和承担看护者角色的实际情况，同时在医院照顾患有心脏病的孩子。结果拓宽了护理人员角色的范围，包括医院环境之外的整个家庭单位。本综述揭示了这些挑战对照顾者能力、幸福感和对生病孩子的依恋的影响，为发展以家庭为中心的儿科住院心脏服务的优先事项提供了依据。