Health service experiences among adults with hereditary spastic paraparesis or neurofibromatosis type 1.,Molecular Genetics & Genomic Medicine

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Health service experiences among adults with hereditary spastic paraparesis or neurofibromatosis type 1.
Molecular Genetics & Genomic Medicine ( IF 1.5 ) Pub Date : 2020-09-14 , DOI: 10.1002/mgg3.1399
Krister W Fjermestad _{1,

2} , Øivind Kanavin ₂ , Livø Nyhus ₂ , Lise B Hoxmark ₂

Affiliation

Persons with rare disorders may experience poorer health services due to limited knowledge about rare disorders among health professionals. Knowledge about how persons with rare disorders perceive health services can help inform service providers to enhance their practices.

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