ABSTRACT

Background

In an increasingly litigious medical environment, this study examined women’s experiences of their interactions with practitioners when severe abnormalities are discovered at birth.

Methods

Eight in-depth interviews with women were conducted in France. Data were analysed using Interpretative Phenomenological Analysis.

Results

Four superordinate themes were identified: the importance of attunement to women’s emotions and needs; the possibility of litigation but no direct accusation; reasons for not resorting to litigation; and reframing and positive transformations. Despite experiencing distress, women were reluctant to make a complaint against practitioners. Several factors may account for this, but practitioners’ ability to relate to women with humanity was particularly significant.

Conclusion

Women understood the limits of technology and of the care practitioners can provide, but greatly valued practitioners’ empathic and honest communications. Thus, adopting a transparent and open approach may foster trusting relationships with women/parents. In turn, this may lower the prospect of litigation being brought against practitioners when severe abnormalities are discovered at birth.

中文翻译：

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产前诊断：出生时发现严重异常时女性与医生的互动

摘要

背景

在诉讼日益激烈的医疗环境中，这项研究调查了女性在出生时发现严重异常时与从业者互动的经历。

方法

在法国对女性进行了八次深入访谈。使用解释性现象学分析分析数据。

结果

确定了四个上级主题：调整女性情绪和需求的重要性；有诉讼但没有直接指控的可能性；不诉诸诉讼的理由；和重构和积极的转变。尽管经历了痛苦，但女性不愿对大法弟子提出投诉。有几个因素可以解释这一点，但从业者与女性相处的能力尤为重要。

结论

女性了解技术和从业者所能提供的护理的局限性，但非常重视从业者的同理心和诚实的沟通。因此，采用透明和开放的方法可以促进与女性/父母的信任关系。反过来，当出生时发现严重异常时，这可能会降低对从业者提起诉讼的可能性。