ABSTRACT

Background

Therapeutic songwriting (TSW) is an activity used with people who have neurological and psychological conditions. TSW can act as a tool for assisting people with primary progressive aphasia (PPA) struggling to regain coherence and meaning amidst the psychosocial sequelae that often accompanies this chronic, progressive medical condition. With help from a facilitating clinician, TSW addresses issues of building and maintaining interpersonal relationships in the face of considerable language challenges.

Aim

This study explored how two different forms of TSW were perceived by a participant with PPA in terms of the quality and meaningfulness of the activity, and as a modality for conducting communication therapy.

Methods & Procedures

The participant was a 64-year-old woman with the logopenic variant of PPA. She participated in 13 therapy sessions designed to increase her successful use of conversational repair strategies while engaged in TSW using two different techniques: Song Parody Technique (SPT) and modified song Collage Technique (SCT). The participant’s perceptions were measured using the Meaningfulness of Songwriting Scale and a Songwriting Satisfaction and Enjoyment scale. A modified version of the ASHA Quality of Communication Life (ASHA QCL) was administered (pre and post) to measure the extent the participant believed TSW impacted her quality of communication life. The use of spontaneous repair strategies (word finding and picture board) during TSW tasks was tallied from recorded sessions.

Outcomes & Results

The participant found both forms of TSW meaningful. She enjoyed the activity and indicated creating the two songs was satisfying. She preferred the SPT over the modified SCT. When compared to pre-ASHA QCL measures, the participant felt it “easier to communicate” and to “stay in touch with family/friends”. She rated herself higher in terms of feeling “included”, “seeing the funny things in life”, “trying when people didn’t understand her”, and was more “confident in her ability to communicate”. The use of conversation repair increased from 20% to 80% of the opportunities during TSW.

Conclusions

Given the risk for psychosocial sequelae that often accompanies PPA, TSW was identified as an authentic, meaningful activity that created connectedness, while working on communication repairs during therapy. Even in the face of declining linguistic and cognitive abilities, TSW provided an opportunity for enriched social interaction, self-expression, motivation, confidence, and enhanced quality of communication. TSW addressed the importance of maintaining relationships in a manner that supported individualized choice and dignity for the participant.

中文翻译：

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治疗性歌曲创作是一项有意义的、以关系为导向的活动，可为 PPA 患者在治疗期间建立真实的交流机会

摘要

背景

治疗性歌曲创作 (TSW) 是一项与有神经和心理疾病的人一起使用的活动。TSW 可以作为一种工具，帮助患有原发性进行性失语症 (PPA) 的人在这种慢性、进行性医疗状况经常伴随的心理社会后遗症中努力恢复连贯性和意义。在协助临床医生的帮助下，TSW 解决了面对相当大的语言挑战时建立和维持人际关系的问题。

目的

本研究探讨了 PPA 参与者如何在活动的质量和意义方面感知两种不同形式的 TSW，以及作为进行沟通治疗的一种方式。

方法和程序

参与者是一名 64 岁的女性，患有 PPA 的 logopenic 变异。她参加了 13 次治疗课程，旨在提高她对对话修复策略的成功使用，同时使用两种不同的技术进行 TSW：歌曲模仿技术 (SPT) 和修改后的歌曲拼贴技术 (SCT)。参与者的感知是使用歌曲创作的意义量表和歌曲创作的满意度和享受量表来衡量的。对 ASHA 交流生活质量 (ASHA QCL) 的修改版本进行了管理（前和后），以衡量参与者认为 TSW 影响她的交流生活质量的程度。TSW 任务期间自发修复策略（单词查找和图片板）的使用从记录的会话中进行统计。

结果和结果

参与者发现两种形式的 TSW 都很有意义。她很喜欢这项活动，并表示创作两首歌很令人满意。与改良的 SCT 相比，她更喜欢 SPT。与 ASHA 之前的 QCL 措施相比，参与者觉得“更容易沟通”和“与家人/朋友保持联系”。她在“被包容”、“看到生活中有趣的事情”、“在人们不理解她时尝试”等方面对自己的评价更高，并且“对自己的沟通能力更有信心”。在 TSW 期间，使用对话修复的机会从 20% 增加到 80%。

结论

考虑到 PPA 常伴随着社会心理后遗症的风险，TSW 被认为是一种真实的、有意义的活动，可以在治疗期间进行沟通修复，同时建立联系。即使面对语言和认知能力的下降，TSW 也提供了丰富的社交互动、自我表达、动机、信心和提高沟通质量的机会。TSW 强调了以支持参与者的个性化选择和尊严的方式维持关系的重要性。