This paper examines women’s experiences with decision-making about non-invasive prenatal testing (NIPT). Such tests offer knowledge about chromosomal disorders early in pregnancy, without the risk of miscarriage associated with invasive procedures such as amniocentesis. Based on qualitative interviews with women in Germany who used, or declined, NIPT, we show how some women, who would not consider amniocentesis due to the risk of miscarriage, welcome the knowledge provided by, and the additional agency resulting from, NIPT. For others, declining the offer to “know more” becomes increasingly difficult to articulate. The absence of risk strips women of a “good reason” to justify their decision not to test, thus implicitly challenging their “right not to know.” Moreover, NIPT heightens moral dilemmas within relationships with partners, existing children, and sometimes other close relatives. While clinically “non-invasive,” we argue that NIPT changes decision-making in an ethically and socially highly significant way.

本文考察了女性在无创产前检查（NIPT）决策方面的经验。这样的测试提供了有关妊娠早期染色体疾病的知识，而没有与诸如羊膜穿刺术等侵入性手术相关的流产的风险。根据对使用或拒绝使用NIPT的德国女性进行的定性访谈，我们显示了一些由于流产风险而不会考虑羊膜穿刺术的女性如何欢迎NIPT提供的知识以及由此产生的其他代理。对于其他人来说，拒绝“了解更多”的提议变得越来越难以表达。缺乏风险剥夺了妇女“充分的理由”来证明其决定不进行测试的理由，从而隐含地挑战了她们的“权利不包括”。要知道。” 此外，NIPT加剧了与伴侣，现有孩子以及有时与其他近亲的关系中的道德困境。尽管临床上是“非侵入性”的，但我们认为NIPT以一种在道德和社会上极为重要的方式改变了决策。