Abstract

The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.

中文翻译：

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COVID-19 时代的伦理与信息学：公共卫生组织和公共政策的挑战和建议。

 抽象的

美国的 COVID-19 大流行应对措施暴露了信息系统和流程中的重大缺陷，阻碍了及时的临床和公共卫生决策。具体而言，利用信息学来减缓 SARS-CoV-2 的传播、支持 COVID-19 护理服务并加速知识发现，使隐私、监视、国家权力限制以及公共卫生和临床之间的互操作性等问题成为最前沿的问题。信息系统。通过建立共识的过程，我们根据大流行的三个主题批判性地分析与信息学相关的道德问题：(1) 公共卫生报告和数据共享，(2) 接触者追踪和跟踪，以及 (3) 临床评分工具重症监护。我们提供了在大流行期间可行的伦理考虑和建议的背景和理由，并提出了呼吁对公共卫生组织和政策改革进行长期、更广泛的变革（大流行之外）的建议。