Background and Objectives: The high level of acceptance and consistent use of smartphones by children and adolescents present new opportunities to monitor and collect health data. For acutely ill children and adolescents, collecting symptom data via smartphone applications (apps) provides patient-reported data that can be collected daily and offers the potential to provide a more comprehensive picture of the symptom experience. The purpose of this study was to employ user-centered design principles and medical professional input in order to obtain feedback and insight into redesigning our Technology Recordings for better Understanding Blood and Marrow Transplant (TRU-PBMT) app. This redesigned app will be used for children and adolescents with cancer or undergoing blood and marrow transplantation. Method: We interviewed six pediatric blood and marrow transplant patients (ages 10-17 years) who had pilot tested the app, and we surveyed 30 pediatric oncology clinicians. Results: Interview feedback from previous app users and survey feedback from clinicians guided the app redesign. We incorporated suggestions to make the app more engaging, meaningful, personal, and motivating in order to increase symptom reporting. We added emojis to the symptom tracker, a mood scale, and personalized symptom graphs. Conclusion: Leveraging mobile health technologies may be a useful and acceptable approach to obtain symptom data; however, design and software development needs to be evidenced-based and informed by user needs. Our approach using patient and clinician feedback was valuable in the redesign of the TRU-PBMT app and will contribute to symptom research for acutely ill children and adolescents.

中文翻译：

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以用户为中心的重病儿童和青少年应用程序设计

背景和目标：儿童和青少年对智能手机的高度接受和持续使用为监测和收集健康数据提供了新的机会。对于重病儿童和青少年，通过智能手机应用程序（应用程序）收集症状数据提供了可以每天收集的患者报告数据，并有可能提供更全面的症状体验图景。本研究的目的是采用以用户为中心的设计原则和医学专业意见，以获得反馈和洞察，重新设计我们的技术记录，以更好地了解血液和骨髓移植 (TRU-PBMT) 应用程序。这个重新设计的应用程序将用于患有癌症或接受血液和骨髓移植的儿童和青少年。方法：我们采访了 6 名已试用该应用程序的儿童血液和骨髓移植患者（10-17 岁），并调查了 30 名儿童肿瘤临床医生。结果：之前应用程序用户的访谈反馈和临床医生的调查反馈指导了应用程序的重新设计。我们采纳了一些建议，使应用程序更具吸引力、更有意义、更个性化和更具激励性，以增加症状报告。我们在症状跟踪器、情绪量表和个性化症状图表中添加了表情符号。结论：利用移动医疗技术可能是获取症状数据的一种有用且可接受的方法；然而，设计和软件开发需要以证据为基础并以用户需求为依据。