Despite 50 years of modern palliative care (PC), a misunderstanding of its purpose persists. The original message that PC is focused on total care, helping to live until the person dies, is being replaced and linked to feelings of fear, anxiety and death, instead of compassion, support or appropriate care. Society is still afraid to speak its name, and specialized units are identified as “places of death” as opposed to “places of life” meant to treat suffering. This issue is prohibitive to the implementation and development of PC policies worldwide. It is imperative to identify what message PC professionals are relaying to patients and other health care specialists and how that message may condition understandings of the right to access PC. A qualitative study, employing focused ethnography and participant observation (PO) of the daily interaction of PC professionals with patients and family members in three different PC services. Two researchers independently conducted a thematic analysis, followed by member checking with participants. A total of 242 h of participant observation revealed the following messages sent by PC professionals in their daily interaction with patients and families: i) We are focused on your wellbeing; ii) You matter: we want to get to know you; iii) Your family is important to us. The complexity of PC discourses contributes to the difficulty of identifying a clear universal message between PC professionals, patients and families. The PC professionals observed transmit a simple message focused on their actions rather than their identity, which may perpetuate some social/cultural misunderstandings of PC. It seems there is a common culture, based on the same values and attitudes, within the messages that PC professionals transmit to patients and their families. PC teams are characterised by their availability.

中文翻译：

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姑息治疗本身的话语：姑息治疗中专业消息传递的民族志。

尽管现代姑息治疗（PC）已有50年历史，但其目的仍然存在误解。PC最初关注的是全面护理，帮助人们活到死亡，这一信息已被替换，并与恐惧，焦虑和死亡的感觉联系在一起，而不是同情，支持或适当的照顾。社会仍然不敢说出自己的名字，专门单位被确定为“死亡场所”，而不是旨在治疗痛苦的“生活场所”。此问题对于在全球范围内实施和开发PC策略是令人望而却步的。必须确定PC专业人员正在向患者和其他医疗保健专家传达什么消息，以及该消息如何影响对PC访问权的理解。定性研究 在三种不同的PC服务中，采用有针对性的人种志和参与者观察（PO）来评估PC专业人员与患者和家庭成员的日常互动。两名研究人员独立进行了主题分析，然后与参与者进行了成员检查。总共242小时的参与者观察显示，PC专业人员在与患者和家人的日常互动中发送了以下消息：i）我们专注于您的健康；ii）你很重要：我们想认识你；iii）您的家人对我们很重要。PC话语的复杂性导致难以确定PC专业人员，患者和家属之间清晰的通用信息。观察到的PC专业人员发出了一条简单的信息，重点是他们的行为，而不是他们的身份，这可能会使PC的某些社会/文化误解长期存在。在PC专业人士向患者及其家人传达的信息中，似乎存在着基于相同价值观和态度的共同文化。PC团队的特点是其可用性。