It is important to understand the total burden of COPD and thereby be able to identify patients who need more intensive palliative care to avoid deteriorated quality of life. The aim of this study was to describe the psychosocial and demographic characteristics of a population with advanced COPD in a stable phase of the disease. This study was cross-sectional based on a prospective observational cohort. The following questionnaires were administered: Chronic Respiratory Disease Questionnaire (CRQ), The COPD Assessment Test (CAT), The Hospital and Anxiety and Depression Scale (HADS), The Medical Research Council dyspnoea scale (MRC), and self-rate general health. We included 242 patients with advanced COPD from a Danish pulmonary outpatient clinic. Their mean FEV1 was 38% (±12.7) and 19% were treated with long term oxygen. The mean CRQ domain score was CRQ-dyspnea 4.21 (±1.4), CRQ-Mastery 4.88 (±1.3), CRQ-Emotional 4.81 (±1.2), CRQ-Fatigue 3.93 (±1.3). The mean CAT-score was 18.4 (± 6.7), and 44% had a CAT score > 20. The mean score on the subscale for anxiety (HADS-A) and depression (HADS-D) was 5.07 (±3.9) and 5.77 (±3.9), respectively. Thirty percent self-rated their health as bad or very bad and 19.8% were current smokers. This study describes the characteristics of a population with advanced COPD in a stable phase of their disease. Our results illustrate how the population although treated in an outpatient structure already focusing on palliative needs, still live with unmet palliative needs and impaired quality of life.

中文翻译：

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晚期慢性阻塞性肺疾病人群的特征和与健康相关的生活质量，一项横断面研究。


重要的是要了解慢性阻塞性肺病的总负担，从而能够识别出需要加强姑息治疗以避免生活质量恶化的患者。本研究的目的是描述处于疾病稳定阶段的晚期慢性阻塞性肺病患者的心理社会和人口特征。这项研究是基于前瞻性观察队列的横断面研究。进行了以下问卷调查：慢性呼吸系统疾病问卷（CRQ）、慢性阻塞性肺病评估测试（CAT）、医院焦虑和抑郁量表（HADS）、医学研究委员会呼吸困难量表（MRC）和一般健康状况自评。我们纳入了来自丹麦一家肺部门诊的 242 名晚期 COPD 患者。他们的平均 FEV1 为 38% (±12.7)，其中 19% 接受长期吸氧。平均 CRQ 领域评分为 CRQ-呼吸困难 4.21 (±1.4)、CRQ-掌握 4.88 (±1.3)、CRQ-情绪 4.81 (±1.2)、CRQ-疲劳 3.93 (±1.3)。平均 CAT 分数为 18.4 (± 6.7)，44% 的 CAT 分数为 > 20。焦虑 (HADS-A) 和抑郁 (HADS-D) 子量表的平均分数为 5.07 (±3.9)，分别为 5.77 (±3.9)。 30% 的人认为自己的健康状况很差或非常差，19.8% 的人目前是吸烟者。这项研究描述了处于疾病稳定期的晚期慢性阻塞性肺病患者的特征。我们的结果表明，虽然在门诊结构中接受治疗的人群已经关注姑息性需求，但他们仍然生活在姑息性需求未得到满足和生活质量受损的情况下。