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Understanding the holistic experiences of living with a kidney transplant: an interpretative phenomenological study (protocol).
BMC Nephrology ( IF 2.2 ) Pub Date : 2020-06-11 , DOI: 10.1186/s12882-020-01860-3
C McKeaveney 1 , H Noble 1 , A E Courtney 2 , P Gill 3 , S Griffin 4 , W Johnston 5, 6 , A P Maxwell 1, 2 , F Teasdale 6 , J Reid 1
Affiliation  

Currently very little is known about the perceptions and experiences of kidney transplant recipients from a qualitative perspective. As highlighted by the European Kidney Health Alliance recommendations, providing holistic care to kidney patients is important however this is currently an unmet care need in renal disease. It is imperative to understand patient experiences to ensure that they are included in key strategies and future renal service planning. Ignoring these important patient views means that there is a significant risk of inappropriate renal service provision and lack of adequate support impacting on overall health. A purposive sampling strategy will recruit individuals currently living with a kidney transplant, 6 months to 5 years post-transplant. A maximum of 30 patients will be recruited between two Regional Nephrology units within the United Kingdom via clinical gatekeepers. In-depth interviews will be undertaken with participants living with a kidney transplant across the two sites. Interviews will be digitally-recorded, transcribed verbatim and subjected to interpretative phenomenological analysis. Renal healthcare professionals need to understand more than the biological impact of receiving a kidney transplant. Understanding the holistic and multi-domain experiences that these patients experience will help healthcare professionals to recognize the needs of this group and ensure more responsive care.

中文翻译:

了解肾移植患者的整体体验:解释性现象学研究(协议)。

目前,从定性的角度,对肾移植受者的看法和经历知之甚少。正如欧洲肾脏健康联盟的建议所强调的那样,为肾脏患者提供整体护理很重要,但目前这在肾脏疾病方面还没有得到满足。必须了解患者的体验,以确保将其纳入关键策略和未来的肾脏服务计划。忽视这些重要的患者意见意味着存在不适当的肾脏服务提供和缺乏足够支持影响整体健康的重大风险。有目的的抽样策略将招募目前接受肾移植、移植后 6 个月至 5 年的个体。最多 30 名患者将通过临床看门人在英国境内的两个区域肾脏病学单位之间招募。将与两个地点的肾移植参与者进行深入访谈。访谈将被数字记录,逐字转录,并进行解释性现象学分析。肾脏保健专业人员需要了解的不仅仅是接受肾脏移植的生物学影响。了解这些患者所经历的整体和多领域体验将有助于医疗保健专业人员识别该群体的需求并确保提供更及时的护理。访谈将被数字记录,逐字转录,并进行解释性现象学分析。肾脏保健专业人员需要了解的不仅仅是接受肾脏移植的生物学影响。了解这些患者所经历的整体和多领域体验将有助于医疗保健专业人员识别该群体的需求并确保提供更及时的护理。访谈将被数字记录,逐字转录,并进行解释性现象学分析。肾脏保健专业人员需要了解的不仅仅是接受肾脏移植的生物学影响。了解这些患者所经历的整体和多领域体验将有助于医疗保健专业人员识别该群体的需求并确保提供更及时的护理。
更新日期:2020-06-11
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