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Quality of Life and the Health System: a 22-Country Comparison of the Situation of People with Spinal Cord Injury
Archives of Physical Medicine and Rehabilitation ( IF 3.6 ) Pub Date : 2020-12-01 , DOI: 10.1016/j.apmr.2020.04.030
Diana Pacheco Barzallo 1 , Mirja Gross-Hemmi 2 , Jerome Bickenbach 1 , Alvydas Juocevičius 3 , Daiana Popa 4 , Luh Karunia Wahyuni 5 , , Vegard Strøm 6
Affiliation  

OBJECTIVE To analyze and compare how performance indicators of the health system are linked to the self-reported quality of life (QoL) of people with spinal cord injury (SCI) in 22 countries participating in the International Spinal Cord (InSCI) community survey. DESIGN Cross-sectional survey. SETTING 22 countries representing all six WHO regions, community setting. PARTICIPANTS A total of 12,591 (N) persons with traumatic or non-traumatic SCI aged ≥18 years. INTERVENTIONS n/a MAIN OUTCOMES: Self-reported satisfaction with health; performance of daily activities; oneself; personal relationships and living conditions. A total score of quality of life (QoL) was calculated using these five definitions. RESULTS The most important health system indicators for self-reported QoL of persons with SCI were social attitudes and access to health care services, followed by nursing care, access to public spaces, the provision of vocational rehabilitation, transportation, medication and assistive devices. In general, persons with SCI living in higher-income countries reported a higher QoL than people in lower-income countries, with some exceptions. In the InSCI sample, the top performing country was The Netherlands with an estimated median QoL of 66% (on a 0%-100% scale) CONCLUSIONS: The living situation of people with SCI is highly influenced by the performance of their health system. Measuring and comparing the performance of the health system gives accountability to a country's citizens, but it also helps to determine areas for improvement.

中文翻译:

生活质量和卫生系统:22 个国家脊髓损伤患者情况的比较

目的 分析和比较参与国际脊髓 (InSCI) 社区调查的 22 个国家的卫生系统绩效指标如何与脊髓损伤 (SCI) 患者自我报告的生活质量 (QoL) 相关联。设计 横断面调查。设置 代表所有六个世卫组织区域的 22 个国家,社区设置。参与者 共有 12,591 (N) 名年龄≥18 岁的创伤性或非创伤性 SCI 患者。干预 n/a 主要结果:自我报告的健康满意度;日常活动的表现;自己; 个人关系和生活条件。使用这五个定义计算生活质量 (QoL) 的总分。结果 SCI 患者自我报告 QoL 的最重要的卫生系统指标是社会态度和获得卫生保健服务的机会,其次是护理、进入公共场所、提供职业康复、交通、药物和辅助设备。一般来说,生活在高收入国家的 SCI 患者的生活质量高于低收入国家的人,但有一些例外。在 InSCI 样本中,表现最好的国家是荷兰,其 QoL 中位数估计为 66%(在 0%-100% 范围内) 结论:SCI 患者的生活状况很大程度上受其卫生系统表现的影响。衡量和比较卫生系统的绩效可以让一个国家的公民承担责任,但也有助于确定需要改进的领域。生活在高收入国家的 SCI 患者报告的 QoL 高于低收入国家的人,但有一些例外。在 InSCI 样本中,表现最好的国家是荷兰,其 QoL 中位数估计为 66%(在 0%-100% 范围内) 结论:SCI 患者的生活状况很大程度上受其卫生系统表现的影响。衡量和比较卫生系统的绩效可以让一个国家的公民承担责任,但也有助于确定需要改进的领域。生活在高收入国家的 SCI 患者报告的 QoL 高于低收入国家的人,但有一些例外。在 InSCI 样本中,表现最好的国家是荷兰,其 QoL 中位数估计为 66%(在 0%-100% 范围内) 结论:SCI 患者的生活状况很大程度上受其卫生系统表现的影响。衡量和比较卫生系统的绩效可以让一个国家的公民承担责任,但也有助于确定需要改进的领域。SCI 患者的生活状况在很大程度上受其卫生系统表现的影响。衡量和比较卫生系统的绩效可以让一个国家的公民承担责任,但也有助于确定需要改进的领域。SCI 患者的生活状况在很大程度上受其卫生系统表现的影响。衡量和比较卫生系统的绩效可以让一个国家的公民承担责任,但也有助于确定需要改进的领域。
更新日期:2020-12-01
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