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Health literacy, health outcomes, and the caregiver role in traumatic brain injury.
Rehabilitation Psychology ( IF 1.9 ) Pub Date : 2020-11-01 , DOI: 10.1037/rep0000330
Elizabeth A Hahn 1 , Nicholas R Boileau 2 , Robin A Hanks 3 , Angelle M Sander 4 , Jennifer A Miner 2 , Noelle E Carlozzi 2
Affiliation  

Purpose/Objective: The purpose of this study is to estimate the occurrence of low health literacy among caregivers of people with traumatic brain injury (TBI), and to evaluate associations of health literacy with caregiver health-related quality of life (HRQOL) and perceptions of the caregiving role. Research Method/Design: The TBI-CareQOL measurement system assesses important self-reported outcomes for caregivers of civilians or service members/veterans (SMVs) with TBI. The validation phase included the Health Literacy Assessment Using Talking Touchscreen Technology (Health LiTT) measure. Multivariable regression evaluated the impact of low health literacy on generic and TBI-specific HRQOL and appraisals of the caregiving role, adjusted for caregiver gender, race/ethnicity and education, and the functional status of the TBI care recipient. Results: Among 131 caregivers, 28 (21%) had low health literacy. Compared with the high health literacy group, the group with low health literacy had fewer women, more racial/ethnic minorities, and lower education (all p < .05). The low health literacy group reported more subjective caregiving burden, less satisfaction with their relationship with the TBI recipient, less caregiving mastery, and poorer physical health (all p < .05). There were no differences between health literacy groups in caregiving ideology, caregiver-specific HRQOL or general mental health. Conclusions/Implications: A better understanding of the links between health literacy and caregiver HRQOL and the caregiving role can help identify strategies to meet the needs of this underserved population. Tailored interventions for caregivers with low health literacy could improve outcomes for both the caregiver and the care recipient. (PsycInfo Database Record (c) 2020 APA, all rights reserved).

中文翻译:


健康素养、健康结果以及护理人员在创伤性脑损伤中的作用。



目的/目的:本研究的目的是估计创伤性脑损伤 (TBI) 患者的护理人员健康素养较低的情况,并评估健康素养与护理人员健康相关生活质量 (HRQOL) 和认知的关系的照顾角色。研究方法/设计:TBI-CareQOL 测量系统评估患有 TBI 的平民或服役人员/退伍军人 (SMV) 的护理人员的重要自我报告结果。验证阶段包括使用语音触摸屏技术进行健康素养评估 (Health LiTT) 措施。多变量回归评估了低健康素养对一般和 TBI 特定 HRQOL 的影响,以及对护理角色的评估,并根据护理人员的性别、种族/民族和教育程度以及 TBI 护理接受者的功能状态进行了调整。结果:131 名护理人员中,28 名(21%)的健康素养较低。与健康素养较高的群体相比,健康素养较低的群体中女性较少、少数族裔/族裔较多且受教育程度较低(全部 p < .05)。健康素养较低的群体报告主观护理负担较多,对与 TBI 接受者的关系满意度较低,护理掌握程度较低,身体健康状况较差(所有 p < .05)。健康素养组之间在护理理念、护理人员特定 HRQOL 或一般心理健康方面没有差异。结论/启示:更好地了解健康素养与护理人员 HRQOL 和护理角色之间的联系有助于确定满足这一服务不足人群需求的策略。针对健康素养较低的护理人员量身定制的干预措施可以改善护理人员和被护理对象的结果。 (PsycInfo 数据库记录 (c) 2020 APA,保留所有权利)。
更新日期:2020-11-01
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