Background and Purpose This qualitative phenomenological study explored the lived experiences of family members who have been referred to a cardiogenetics clinic following the loss of a family member to sudden cardiac death (SCD). These family members were evaluated in a Cardiogenetics Clinic in a Children's Hospital in the New York region, which utilizes an interprofessional approach to care. Methods A qualitative phenomenological approach was used to explore the lived experience of family members that were referred following the SCD of a family member. The researcher used hermeneutic dialectics and interviewed family members that attended the Cardiogenetics Clinic. Results Insights gained through discussion were discussed in the following themes: stories of feelings being heard, stories of meaningfulness, and stories of mutual process. This led to the transformation of the typical linear clinic process to a transformative and dynamic model for integrated delivery of care. Implications for Practice This interprofessional model of care offers information regarding SCD, a genetic profile to determine risk for SCD, an integrative collaborative approach to care as well as nursing, medical interventions, psychological support, and counseling for families.

中文翻译：

---

理论在临床实践中的变革性影响：心脏遗传学诊所的研究。

背景和目的这项定性现象学研究探讨了在家庭成员因心源性猝死 (SCD) 丧生后被转诊到心脏遗传学诊所的家庭成员的生活经历。这些家庭成员在纽约地区一家儿童医院的心脏遗传学诊所接受了评估，该诊所采用跨专业的护理方法。方法 使用定性现象学方法来探索在家庭成员 SCD 后转介的家庭成员的生活经历。研究人员使用解释学辩证法并采访了参加心脏病遗传学诊所的家庭成员。结果 在以下主题中讨论了通过讨论获得的见解：感受的故事、有意义的故事和相互过程的故事。这导致典型的线性诊所流程转变为用于综合提供护理的变革性和动态模型。实践意义 这种跨专业的护理模式提供了有关 SCD 的信息、确定 SCD 风险的遗传特征、护理以及护理、医疗干预、心理支持和家庭咨询的综合协作方法。