EAN guideline on palliative care of people with severe, progressive multiple sclerosis.,European Journal of Neurology

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EAN guideline on palliative care of people with severe, progressive multiple sclerosis.
European Journal of Neurology ( IF 4.5 ) Pub Date : 2020-05-29 , DOI: 10.1111/ene.14248
A Solari ₁ , A Giordano _{1,

2} , J Sastre-Garriga ₃ , S Köpke _{4,

5} , A C Rahn ₅ , I Kleiter ₆ , K Aleksovska ₇ , M A Battaglia ₈ , J Bay ₉ , M Copetti ₁₀ , J Drulovic ₁₁ , L Kooij ₁₂ , J Mens ₁₂ , E R Meza Murillo ₃ , I Milanov ₁₃ , R Milo _{14,

15} , T Pekmezovic ₁₆ , J Vosburgh ₁₇ , E Silber ₁₈ , S Veronese ₁₉ , F Patti ₂₀ , R Voltz _{21,

22} , D Oliver ₂₃ ,

Affiliation

Unit of Neuroepidemiology, Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Italy.
Department of Psychology, University of Turin, Turin, Italy.
Department of Neurology/Neuroimmunology, Multiple Sclerosis Centre of Catalonia (Cemcat), Hospital Universitari Vall d'Hebron, Universitat Autònoma de Barcelona, Barcelona, Spain.
Institute of Clinical Nursing Science, University of Cologne, Cologne, Germany.
Institute of Neuroimmunology and Multiple Sclerosis, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Marianne-Strauß-Klinik, Behandlungszentrum Kempfenhausen für Multiple Sklerose Kranke gGmbH, Berg, Germany.
European Academy of Neurology, Vienna, Austria.
Department of Life Sciences, University of Siena, Siena, Italy.
Multiple Sclerosis International Federation, People with MS Advisory Committee, Copenhagen, Denmark.
Unit of Biostatistics, Fondazione IRCCS Casa Sollievo della Sofferenza, San Giovanni Rotondo, Italy.
Clinic of Neurology, CCS, Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
Nieuw Unicum, Zandvoort, The Netherlands.
Medical University of Sofia, Sofia, Bulgaria.
Department of Neurology, Barzilai Medical Center, Ashkelon, Israel.
Faculty of Health Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel.
Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
Israel Multiple Sclerosis Society, Tel-Aviv, Israel.
Department of Neurology, King's College Hospital NHS Foundation Trust, London, UK.
FARO Charitable Foundation, Turin, Italy.
Neurology Clinic, Multiple Sclerosis Centre, University Hospital Policlinico Vittorio Emanuele, Catania, Italy.
Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.
Center for Health Services Research (ZVFK), Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany.
The Tizard Centre, University of Kent, Canterbury, UK.

Patients with severe, progressive multiple sclerosis (MS) have complex physical and psychosocial needs, typically over several years. Few treatment options are available to prevent or delay further clinical worsening in this population. The objective was to develop an evidence‐based clinical practice guideline for the palliative care of patients with severe, progressive MS.

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