BACKGROUND Optimal management in expert centers for Parkinson's disease (PD) usually involves pharmacological and non-pharmacological interventions, delivered by a multidisciplinary approach. However, there is no guideline specifying how this model should be organized. Consequently, the nature of multidisciplinary care varies widely. OBJECTIVE To optimize care delivery, we aimed to provide recommendations for the organization of multidisciplinary care in PD. METHODS Twenty expert centers in the field of multidisciplinary PD care participated. Their leading neurologists completed a survey covering eight themes: elements for optimal multidisciplinary care; team members; role of patients and care partners; team coordination; team meetings; inpatient versus outpatient care; telehealth; and challenges towards multidisciplinary care. During a consensus meeting, outcomes were incorporated into concept recommendations that were reviewed by each center's multidisciplinary team. Three patient organizations rated the recommendations according to patient priorities. Based on this feedback, a final set of recommendations (essential elements for delivery of multidisciplinary care) and considerations (desirable elements) was developed. RESULTS We developed 30 recommendations and 10 considerations. The patient organizations rated the following recommendations as most important: care is organized in a patient-centered way; every newly diagnosed patient has access to a core multidisciplinary team; and each team has a coordinator. A checklist was created to further facilitate its implementation. CONCLUSION We provide a practical tool to improve multidisciplinary care for persons with PD at the organizational level. Future studies should focus on implementing these recommendations in clinical practice, evaluating their potential applicability and effectiveness, and comparing alternative models of PD care.

中文翻译：

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关于组织帕金森病多学科临床护理团队的建议。


背景帕金森病（PD）专家中心的最佳管理通常涉及通过多学科方法实施的药物和非药物干预。但是，没有指导方针指定如何组织该模型。因此，多学科护理的性质差异很大。目的 为了优化护理服务，我们旨在为 PD 多学科护理的组织提供建议。方法 20 个多学科 PD 护理领域的专家中心参与其中。他们的主要神经科医生完成了一项涵盖八个主题的调查：最佳多学科护理的要素；团队成员；患者和护理伙伴的作用；团队协调；团队会议；住院与门诊护理；远程医疗；以及多学科护理面临的挑战。在共识会议期间，结果被纳入概念建议中，并由每个中心的多学科团队进行审查。三个患者组织根据患者优先事项对建议进行评级。根据这些反馈，制定了一套最终建议（提供多学科护理的基本要素）和注意事项（理想要素）。结果 我们提出了 30 项建议和 10 项考虑因素。患者组织将以下建议评为最重要：以患者为中心的方式组织护理；每个新诊断的患者都可以接触核心多学科团队；每个团队都有一名协调员。创建了清单以进一步促进其实施。结论 我们提供了一个实用工具，可以在组织层面改善帕金森病患者的多学科护理。 未来的研究应侧重于在临床实践中实施这些建议，评估其潜在的适用性和有效性，并比较 PD 护理的替代模式。