Neurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson’s disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson’s disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson’s or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.

中文翻译：

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患有痴呆症和帕金森病的家庭成员的家庭护理人员的心理社会调整：一项比较研究。


帕金森氏症和痴呆症等神经退行性疾病在世界范围内非常普遍。患有这些疾病的人通常会接受家庭成员的家庭护理和帮助，而家人必须投入大量时间来照顾被护理者。由于对被照顾者和照顾者以及其他家庭成员的生活质量的影响，家庭照顾者对这两种情况的退化过程的心理社会调整的研究引起了人们的兴趣。这项研究比较了照顾痴呆症和帕金森病患者的家庭成员的心理社会调整，并确定了影响这两种疾病调整过程的主要社会人口变量。为此，我们对西班牙纳瓦拉的 157 名家庭护理人员进行了疾病心理社会调整量表 (PAIS-SR) 和社会人口统计表格。结果表明，帕金森病和痴呆症患者的家庭照顾者对疾病的适应总体上是令人满意的，并且与居住地、收入和就业状况等变量有关。然而，疾病本身（帕金森病或痴呆症）被发现是心理社会调整水平中最有影响力的变量。