Studies are increasingly recognizing health‐related quality of life (HRQOL) as a key pediatric outcome in both clinical and research settings and an essential health outcome measure to assess the effectiveness of medical treatment. However, it has not yet been studied among the healthy siblings of kidney transplant recipients. The aim of this study, therefore, is to examine HRQOL among this population. We asked the following three groups to complete a validated measure of HRQOL among children (KIDSCREEN‐52) : siblings of children who had received kidney transplants (n = 50), kidney transplant recipients (n = 43), and a healthy control group (n = 84). We found that siblings of kidney transplant patients exhibited lower scores for financial resources and autonomy than kidney transplant recipients. They also served lower on physical well‐being, financial resources, autonomy, and parent relations/home life than the control group. However, they scored higher on social acceptance than kidney transplant recipients. Our study underscores the importance of assessing HRQOL in families including a child diagnosed with a chronic illness. Siblings require social and psychological support to promote coping and adaptation.

中文翻译：

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肾脏移植受者兄弟姐妹中与健康相关的生活质量。

研究越来越多地将健康相关的生活质量（HRQOL）视为临床和研究环境中的关键儿科结局，并且是评估医疗效果的基本健康结局指标。但是，尚未在肾脏移植接受者的健康同胞之间进行研究。因此，本研究的目的是检查该人群中的HRQOL。我们要求以下三个小组完成对儿童中HRQOL的有效评估（KIDSCREEN-52 ）：接受肾移植的儿童（n = 50），接受肾移植的儿童（n = 43）和健康对照组（n = 84）的兄弟姐妹。我们发现，肾移植患者的兄弟姐妹在财务资源和自治方面的得分低于肾移植接受者。他们在身体健康，财务资源，自主权和父母关系/家庭生活方面的服务也低于对照组。但是，他们的社会接受度得分高于接受肾脏移植的患者。我们的研究强调了在包括被诊断出患有慢性疾病的儿童在内的家庭中评估HRQOL的重要性。兄弟姐妹需要社会和心理支持以促进应对和适应。