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Consanguinity rates among Syrian refugees in Lebanon: a study on genetic awareness
Journal of Biosocial Science ( IF 2.148 ) Pub Date : 2020-05-13 , DOI: 10.1017/s002193202000022x
Malak El Sabeh 1 , Mohamed Faisal Kassir 1 , Paola Ghanem 1 , Omran Saifi 1 , Dalia El Hadi 1 , Yara Khalifeh 1 , Abdul Rahman Akkawi 1 , Marc Ghabach 1 , Monique Chaaya 2 , Georges Nemer 3 , Ossama Abbas 1 , Mazen Kurban 1, 3
Affiliation  

Consanguineous marriage is a deeply rooted tradition in the Arab world. Such marriages are linked to higher rates of recessive genetic diseases. During the Syrian conflict, which started in 2011, around one million Syrian individuals became refugees in Lebanon. This study assessed the consanguinity rates among Syrian refugees living in Lebanon up to three successive consanguineous generations, and examined refugees’ awareness of the possible consequences of consanguineous marriage and their attitudes towards consanguinity. Their knowledge of, and access to, premarital screening was also assessed. The study was conducted between January and May 2018. Several study sites representing refugees’ distribution within the country were chosen. The study sample included 1008 interviewees from different families. Of those interviewed, 51.9% were in a consanguineous marriage. Interestingly, 23.9% were the product of consanguineous marriages themselves, and 17.9% were consanguineous for three successive generations. The interviewees generally knew about premarital screening, but the majority (61.9%) had not had the screening. The high rates of consanguinity in these Syrian refugees call for immediate action, including raising genetic awareness and providing appropriate genetic counselling. Despite the respondents’ familiarity with premarital screening, there was a low rate of uptake of the test, underscoring the importance of providing better education to these refugees.

中文翻译:

黎巴嫩境内叙利亚难民的血缘关系:一项关于遗传意识的研究

近亲结婚是阿拉伯世界根深蒂固的传统。这种婚姻与隐性遗传病的高发病率有关。在 2011 年开始的叙利亚冲突期间,约有 100 万叙利亚人成为黎巴嫩的难民。本研究评估了居住在黎巴嫩的叙利亚难民的近亲血亲率,直至连续三个近亲世代,并考察了难民对近亲婚姻可能产生的后果的认识以及他们对近亲的态度。还评估了他们对婚前筛查的了解和获得情况。该研究于 2018 年 1 月至 2018 年 5 月期间进行。选择了几个代表难民在该国境内分布的研究地点。研究样本包括来自不同家庭的 1008 名受访者。在受访者中,51 人。9% 是近亲结婚。有趣的是,23.9%是本身是近亲结婚的产物,17.9%是连续三代近亲结婚。受访者普遍了解婚检,但绝大部分(61.9%)没有做过婚检。这些叙利亚难民的高血缘关系需要立即采取行动,包括提高遗传意识和提供适当的遗传咨询。尽管受访者熟悉婚前筛查,但接受检测的比例很低,这凸显了为这些难民提供更好教育的重要性。受访者普遍了解婚检,但绝大部分(61.9%)没有做过婚检。这些叙利亚难民的高血缘关系需要立即采取行动,包括提高遗传意识和提供适当的遗传咨询。尽管受访者熟悉婚前筛查,但接受检测的比例很低,这凸显了为这些难民提供更好教育的重要性。受访者普遍了解婚检,但绝大部分(61.9%)没有做过婚检。这些叙利亚难民的高血缘关系需要立即采取行动,包括提高遗传意识和提供适当的遗传咨询。尽管受访者熟悉婚前筛查,但接受检测的比例很低,这凸显了为这些难民提供更好教育的重要性。
更新日期:2020-05-13
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