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Care providers' and patients' attitudes toward using electronic-patient reported outcomes to support patients with traumatic brain injury: a qualitative study (PRiORiTy).
Brain Injury ( IF 1.5 ) Pub Date : 2020-03-29 , DOI: 10.1080/02699052.2020.1740944
Christel McMullan 1, 2 , Ameeta Retzer 1, 2 , Anita Slade 1, 2, 3 , Derek Kyte 1, 2, 3 , Laura Jones 1 , Antonio Belli 2 , Melanie Calvert 1, 2, 3 , Grace M Turner 1, 2
Affiliation  

To (a) identify residual symptoms and deficits resulting from a traumatic brain injury (TBI) and impact on patients' and their families' quality of life; (b) explore views and experience of care providers, researchers, patients, and carers of using PROMs; and (c) explore their attitudes toward reporting symptoms and impacts on an electronic platform. Methods: Qualitative semi-structured interviews with people with TBI and their carers; health-care professionals, researchers, and third sector staff members working with people with TBI. Results: Symptoms and long-term impacts of TBI included cognitive problems, difficulties functioning, anxiety, and depression. PROMs were seen as improving knowledge of residual symptoms and their impact post-TBI but not always accurately reflecting patients' residual problems. Challenges to completing PROMs were cognitive impairment and lack of insight into condition. Perceived advantages of an electronic platform included easy data collection; flexibility; improving workflow; and the ability to send/ receive feedback and reminders easily. Suggested features of an electronic platform included simple layout, lay language, short questions, few items on the screen, and capability to send/receive feedback and additional information. Conclusion: There is a demand for reporting symptoms and their impact electronically, providing the layout is kept simple and feedback from clinicians is provided.

中文翻译:

护理人员和患者对使用电子患者报告的结局以支持脑外伤患者的态度:一项定性研究(PRiORiTy)。

(a)识别由于脑外伤(TBI)造成的残余症状和缺陷以及对患者及其家庭生活质量的影响;(b)探索护理提供者,研究人员,患者和使用PROM的护理人员的观点和经验;(c)探索他们对在电子平台上报告症状和影响的态度。方法:对TBI及其护理人员进行定性的半结构化访谈;卫生保健专业人员,研究人员以及与TBI人员合作的第三部门工作人员。结果:TBI的症状和长期影响包括认知问题,运作困难,焦虑和沮丧。人们认为PROM可以提高人们对残留症状及其在TBI后的影响的了解,但并不总是能准确反映患者的残留问题。完成PROM的挑战是认知障碍和对病情缺乏了解。电子平台的优势包括易于收集数据;灵活性; 改善工作流程;以及轻松发送/接收反馈和提醒的功能。电子平台的建议功能包括简单的布局,通俗的语言,简短的问题,屏幕上的少量项目以及发送/接收反馈和其他信息的功能。结论:要求以电子方式报告症状及其影响,但要保持布局简单并提供临床医生的反馈。以及轻松发送/接收反馈和提醒的功能。电子平台的建议功能包括简单的布局,通俗的语言,简短的问题,屏幕上的少量项目以及发送/接收反馈和其他信息的功能。结论:要求以电子方式报告症状及其影响,但要保持布局简单并提供临床医生的反馈。以及轻松发送/接收反馈和提醒的功能。电子平台的建议功能包括简单的布局,通俗的语言,简短的问题,屏幕上的少量项目以及发送/接收反馈和其他信息的功能。结论:要求以电子方式报告症状及其影响,但要保持布局简单并提供临床医生的反馈。
更新日期:2020-03-29
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