Understanding of emotional adjustment after stroke is limited. Under one-third of stroke survivors reporting emotional problems receive support. The aim of this study was to explore the process of emotional adjustment post-stroke and investigate the role played by participation in an online stroke community. We applied thematic analysis to 124 relevant posts within 114 discussion threads, written by 39 survivors and 29 carers. The contribution of online community engagement to emotional adjustment was explored using the Social Support Behaviour Code. Stroke survivors share common experiences of emotional adjustment and may not necessarily reach complete acceptance. Positive and negative trajectories of emotional adjustment were identified. Survivors progressed along, or moved between, positive and negative pathways not in a time-dependent manner but in response to "trigger events," such as physical setbacks or anti-depressant treatment, which may occur at any chronological time. An adapted version of Suhr's 1990 Social Support Behaviour Code showed that support provided through the online community took many forms, including advice, teaching, empathy and normalization of concerns. Participation in the stroke community was itself deemed to be a positive "trigger event." There is need to improve awareness of emotional adjustment and their "triggers" amongst stroke survivors, carers and clinicians.

中文翻译：

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中风后的情绪调整：在线中风社区的定性研究

对中风后情绪调节的了解有限。在报告情绪问题的中风幸存者中，不到三分之一得到支持。本研究的目的是探索中风后情绪调整的过程，并调查参与在线中风社区所起的作用。我们对 39 名幸存者和 29 名护理人员撰写的 114 个讨论主题中的 124 个相关帖子进行了主题分析。使用社会支持行为准则探讨了在线社区参与对情绪调整的贡献。中风幸存者有共同的情绪调整经历，不一定能完全接受。确定了情绪调整的积极和消极轨迹。幸存者前进，或移动，积极和消极的途径不是以时间依赖的方式，而是响应“触发事件”，例如身体挫折或抗抑郁治疗，这些事件可能发生在任何时间顺序。Suhr 1990 年社会支持行为准则的改编版本表明，通过在线社区提供的支持有多种形式，包括建议、教学、同理心和关注的正常化。参与中风社区本身被认为是一个积极的“触发事件”。需要提高中风幸存者、护理人员和临床医生对情绪调整及其“触发因素”的认识。s 1990 社会支持行为准则表明，通过在线社区提供的支持有多种形式，包括建议、教导、同理心和关注的正常化。参与中风社区本身被认为是一个积极的“触发事件”。需要提高中风幸存者、护理人员和临床医生对情绪调整及其“触发因素”的认识。s 1990 社会支持行为准则表明，通过在线社区提供的支持有多种形式，包括建议、教导、同理心和关注的正常化。参与中风社区本身被认为是一个积极的“触发事件”。需要提高中风幸存者、护理人员和临床医生对情绪调整及其“触发因素”的认识。