Cognitive difficulties can be subtle and only come to light when patients return home from inpatient care and start to participate in society. Subjective cognitive complaints often interfere with participation, hence capturing cognitive complaints systematically is important. We developed a patient- and relative-reported measure to assess cognitive complaints during daily life activities across the memory, attention and executive domain for patients with acquired brain injury (ABI). The inventory Cognitive Complaints - Participation (CoCo-P) was created based on a literature review, consultations with experts, semi-structured interviews with patients, and a quantitative study. The inventory was administered to patients with ABI (n = 46), their relatives (n = 33) and healthy controls (n = 102) to finalize the inventory. We examined the reported complaints per daily life activity and cognitive domain of patients and healthy controls, and we compared the patients' and relatives' reports. The majority of patients (87-96%) experienced cognitive complaints, mostly related to attention, at work/education, during leisure activities, and in contact with family/friends and community. Patients reported more cognitive complaints than relatives. The CoCo-P seems appropriate to capture cognitive complaints in daily life in patients with mild ABI. Additional research is needed in terms of reliability and validity.

中文翻译：

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CoCo - 参与：测量日常生活中认知问题的新型清单的开发和临床使用

认知困难可能很微妙，只有当患者从住院治疗回家并开始参与社会时才会显现出来。主观认知抱怨经常干扰参与，因此系统地捕捉认知抱怨很重要。我们开发了一种患者和亲属报告的措施来评估获得性脑损伤 (ABI) 患者在记忆、注意力和执行领域的日常生活活动中的认知问题。认知投诉 - 参与 (CoCo-P) 清单是根据文献综述、专家咨询、患者半结构化访谈和定量研究创建的。对 ABI 患者 (n = 46)、他们的亲属 (n = 33) 和健康对照 (n = 102) 进行清单以最终确定清单。我们检查了报告的患者和健康对照的日常生活活动和认知领域的投诉，并比较了患者和亲属的报告。大多数患者 (87-96%) 出现认知障碍，主要与注意力、工作/教育、休闲活动以及与家人/朋友和社区接触有关。患者报告的认知问题多于亲属。CoCo-P 似乎适合捕捉轻度 ABI 患者日常生活中的认知问题。在信度和效度方面需要额外的研究。在工作/教育、休闲活动以及与家人/朋友和社区接触时。患者报告的认知问题比亲属多。CoCo-P 似乎适合捕捉轻度 ABI 患者日常生活中的认知问题。在信度和效度方面需要额外的研究。在工作/教育、休闲活动以及与家人/朋友和社区接触时。患者报告的认知问题多于亲属。CoCo-P 似乎适合捕捉轻度 ABI 患者日常生活中的认知问题。在信度和效度方面需要额外的研究。