Challenging behaviour following traumatic brain injury (TBI) is a major source of stress for families. Providing support can be limited by availability of clinicians and geographic location. A solution is to provide support on-line. This study aimed to evaluate the feasibility of an on-line treatment programme "Carer's Way Ahead" that provides families and carers with psychoeducation about TBI and challenging behaviours, specific approaches to managing apathy, irritability/aggression, acting without thinking and social difficulties and also self-care for the family member. Each module was supplemented with detailed notes and summaries of the sessions. Six family carers, five caring for a person with TBI and one caring for a person with stroke, worked through the programme, providing feedback on wording, content, structure and useability. They also completed measures of family functioning, social problem solving, carer strain, mood and the nature and severity of challenging behaviours. In general, the families were positive about the programme with most finding it useful, practical and logically structured although not all believed it was helpful. There was little change in self-reported challenging behaviour, mood, carer strain and family function over the few months of the programme. Longer-term effects were not examined but this requires further research.

中文翻译：

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为脑损伤和具有挑战性行为的家庭提供在线支持：一项可行性研究

创伤性脑损伤 (TBI) 后的挑战性行为是家庭压力的主要来源。提供支持可能会受到临床医生的可用性和地理位置的限制。一个解决方案是提供在线支持。本研究旨在评估在线治疗计划“Carer's Way Ahead”的可行性，该计划为家庭和照顾者提供有关 TBI 和挑战性行为的心理教育，管理冷漠、易怒/攻击性、不加思考和社交困难的具体方法，以及家庭成员的自我照顾。每个模块都附有详细的笔记和会议摘要。六名家庭护理人员（五名照顾 TBI 患者和一名中风患者）完成了该计划，提供有关措辞、内容、结构和可用性。他们还完成了对家庭功能、社会问题解决、照顾者压力、情绪以及挑战性行为的性质和严重程度的测量。总的来说，家庭对该计划持积极态度，大多数人认为它有用、实用且结构合理，但并非所有人都认为它有帮助。在该计划的几个月中，自我报告的挑战性行为、情绪、照顾者压力和家庭功能几乎没有变化。没有检查长期影响，但这需要进一步研究。实用且逻辑结构合理，尽管并非所有人都认为它有帮助。在该计划的几个月中，自我报告的挑战性行为、情绪、照顾者压力和家庭功能几乎没有变化。没有检查长期影响，但这需要进一步研究。实用且逻辑结构合理，尽管并非所有人都认为它有帮助。在该计划的几个月中，自我报告的挑战性行为、情绪、照顾者压力和家庭功能几乎没有变化。没有检查长期影响，但这需要进一步研究。