Objective:The impact of traumatic brain injury (TBI) extends beyond the person who was injured. Family caregivers of adults with moderate to severe TBI frequently report increased burden, stress and depression. Few studies have examined the well-being of family members in the mild TBI population despite the latter representing up to 95% of all TBIs.Methods:Five areas of well-being were examined in 99 family members (including parents, partners, siblings, other relatives, adult children, friends or neighbours) of adults (aged ≥16 years) with mild TBI. At 6- and 12-month post-injury, family members completed the Bakas Caregiver Outcomes Scale, Short Form-36 Health Survey, EQ-5D-3L, Hospital Anxiety and Depression Scale and the Pittsburgh Sleep Quality Index. Outcomes and change over time and associated factors were examined.Results:At 6 months, group mean scores for health-related quality of life for mental and physical components and overall health status were similar to the New Zealand (NZ) population. Mean scores for sleep, anxiety and depression were below clinically significant thresholds. From 6 to 12 months, there were significant improvements in Bakas Caregiver Outcomes Scale scores by 2.61 (95% confidence interval: 0.72–4.49), health-related quality of life (mental component) and EQ-5D-3L overall health (P = 0.01). Minimally clinically important differences were observed in overall health, anxiety, health-related quality of life and depression at 12 months. Female family members reported significant improvements in physical health over time, and more positive life changes were reported by those caring for males with TBI.Conclusions:The findings suggest diminished burden over time for family members of adults with mild TBI.

中文翻译：

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轻度创伤性脑损伤成人家庭成员随时间的变化

目的：创伤性脑损伤 (TBI) 的影响超出了受伤者的范围。患有中度至重度 TBI 的成年人的家庭照顾者经常报告负担、压力和抑郁增加。很少有研究检查轻度 TBI 人群中家庭成员的健康状况，尽管后者占所有 TBI 的 95%。 方法：对 99 名家庭成员（包括父母、伴侣、兄弟姐妹、成人（≥16 岁）的其他亲属、成年子女、朋友或邻居）患有轻度 TBI。在受伤后 6 个月和 12 个月时，家庭成员完成了 Bakas 看护者结果量表、Short Form-36 健康调查、EQ-5D-3L、医院焦虑和抑郁量表以及匹兹堡睡眠质量指数。检查了结果和随时间的变化以及相关因素。结果：在 6 个月时，与健康相关的精神和身体组成部分以及整体健康状况的健康相关生活质量的组平均得分与新西兰 (NZ) 人口相似。睡眠、焦虑和抑郁的平均得分低于临床显着阈值。从 6 个月到 12 个月，Bakas 看护者结果量表得分显着提高了 2.61（95% 置信区间：0.72-4.49）、健康相关的生活质量（精神部分）和 EQ-5D-3L 整体健康（P 0.01）。在 12 个月时，在整体健康、焦虑、健康相关的生活质量和抑郁方面观察到了最小的临床重要差异。随着时间的推移，女性家庭成员的身体健康状况有了显着改善，照顾患有 TBI 的男性的人报告说，他们的生活发生了更积极的变化。 结论：