Abstract

Aim

To create longitudinal trajectories and reference percentiles for frequency of participation in family and recreational activities for children with cerebral palsy (CP) by Gross Motor Function Classification System (GMFCS) level.

Methods

708 children with CP 18-months to 12-years of age and their families participated in two to five assessments using the GMFCS and Child Engagement in Daily Life Measure. Data were analyzed using mixed-effects models and quantile regression.

Results

Longitudinal trajectories depict the relatively stable level of frequency of participation with considerable individual variability. Average change in the frequency of participation scores of children from 2-12 years of age by GMFCS level varied from 3.7 (GMFCS level I) to – 9.0 points (GMFCS level V). A system to interpret the magnitude of change in percentiles over time is presented.

Conclusions

Longitudinal trajectories and reference percentiles can inform therapists and families for collaboratively designing services and monitoring performance to support children’s participation in family and recreational activities.

中文翻译：

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参加脑性瘫痪儿童的家庭和娱乐活动的纵向轨迹和参考百分比。

摘要

目标

根据总运动功能分类系统（GMFCS）的水平，为脑瘫（CP）儿童创建参与家庭和娱乐活动频率的纵向轨迹和参考百分位数。

方法

708名18个月至12岁的CP儿童及其家人参加了使用GMFCS和“儿童参与度”的评估，评估结果为2到5次。使用混合效应模型和分位数回归分析数据。

结果

纵向轨迹描绘了相对稳定的参与频率水平，且个体差异很大。2至12岁儿童的参与得分频率的平均变化，按GMFCS等级从3.7（GMFCS等级I）到– 9.0点（GMFCS等级V）不等。提出了一种解释百分位数随时间变化的幅度的系统。

结论

纵向轨迹和参考百分位数可为治疗师和家庭提供信息，以共同设计服务并监测表现，以支持儿童参与家庭和娱乐活动。