INTRODUCTION Brain donation is a critical part of advancing research addressing Alzheimer disease and related dementias (ADRD). Studies on ADRD with an option for brain donation are reliant on family members to fulfill the research participant's plan for brain donation. Thus, family members play a pivotal role in increasing brain donation rates, particularly among under-represented groups. METHODS This study examines knowledge, attitudes, and beliefs about brain donation for research among Latinos. Latino men (N=4) and Latina women (N=11) 18 years of age or older with a parental figure age 65 years and over were invited to participate in a focus group. RESULTS Data analyses revealed 3 themes. Two themes focused on factors influencing a family's willingness to support brain donation: (a) social and cultural contexts, and (b) lack of knowledge and information about the brain donation process. The last theme provided recommendations for engaging older Latino adults in ADRD research and brain donation. DISCUSSION Results suggest being inclusive of family members during all stages of the research process, from recruitment to dissemination. In addition, addressing information gaps among Latinos about the process and benefits of brain donation may help mitigate mistrust and misperceptions and increase participation rates in brain donation.

中文翻译：

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“我父母的身体是神圣的”：成年拉丁裔儿童对阿尔茨海默病研究大脑捐赠的看法。


简介 大脑捐赠是推进阿尔茨海默病和相关痴呆症 (ADRD) 研究的重要组成部分。可选择脑部捐赠的 ADRD 研究依赖于家庭成员来完成研究参与者的脑部捐赠计划。因此，家庭成员在提高大脑捐赠率方面发挥着关键作用，特别是在代表性不足的群体中。方法 这项研究调查了拉丁裔美国人关于大脑捐赠研究的知识、态度和信念。年龄在 18 岁或以上且父母年龄在 65 岁及以上的拉丁裔男性 (N=4) 和拉丁裔女性 (N=11) 被邀请参加焦点小组。结果 数据分析揭示了 3 个主题。两个主题重点关注影响家庭支持大脑捐赠意愿的因素：(a) 社会和文化背景，以及 (b) 缺乏有关大脑捐赠过程的知识和信息。最后一个主题提供了让拉丁裔老年人参与 ADRD 研究和大脑捐赠的建议。讨论 结果表明，在研究过程的所有阶段（从招募到传播）都将家庭成员纳入其中。此外，解决拉丁裔之间关于大脑捐赠的过程和好处的信息差距可能有助于减少不信任和误解，并提高大脑捐赠的参与率。